Eeek! Jpouch surgery in three weeks!

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Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 5/7/2008 11:52 PM (GMT -6)   
My 2nd step is finally almost here. On May 30th I go in to have the pouch formed. I'll still be an ostomate, though - I'll have a loop ileo for two months. But after THAT - no more bag! Yikes!
I'm nervous but evcited, too. I'm hoping this surgery goes easier than the first, since I am actually healthy going into this one.
Anyone here have a loop ileo? Any advice?
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy and ileostomy on August 24, 2008.

Westcoast Joe
Regular Member

Date Joined Apr 2005
Total Posts : 130
   Posted 5/8/2008 8:14 AM (GMT -6)   
I have one right now and its not too bad. The problem i had was the ostomy does not stick out very far and would tend to drain under the bag. This would cause me great iratation and pain. My Et nurses suggested i use a wafer and a belt to help push the ostomy out. this worked great. I think you should have a belt on order. I had the regular ostomy before and it was easier to manage. This one is tricky for me. i glad it is only tempory. Walking right away and staying positive has helped me. Treat the nurses well and they will treat you well. good luck and god speed. Westy

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 5/8/2008 8:33 AM (GMT -6)   
Other then chronic burning and high output when exercising, I had no problem with the temp ileo. Don't be surprised if you see blood or stool coming out of your new pouch. This is normal but most surgeons don't tell this to their patients. The temp ileo is temp so do expect it not to be perfect but just find ways to manage it.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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