Other then chronic burning and high output when exercising, I had no problem with the temp ileo. Don't be surprised if you see blood or stool coming out of your new pouch. This is normal but most surgeons don't tell this to their patients. The temp ileo is temp so do expect it not to be perfect but just find ways to manage it.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free