I tried all of the medicines, including Remicade, and every natural diet for 7 years, but ultimately, nothing worked for me. I was the one who was anti-surgery, so my doctor recommended that I get a temporary ileostomy for 6 months to see if my colon would heal. Since I knew it was reversible, I agreed to try it out.
I was so surprised that I loved it! It gave me a freedom that I had not had in years. I could go anywhere and do anything without worrying about
where the bathroom was. I could also sleep through the night without having to get up every hour to go to the bathroom, and I had energy again.
After 8 months, I started bleeding from the rectum, even though I wasn't using it, and that's when I said, "Enough is enough. What am I holding onto here? A diseased colon that could lead to cancer? No thank you! I'm keeping the ileostomy and getting rid of this diseased colon." I called the surgeon the next day and asked her to put me on her surgery schedule. That was in October 2006, and I have never regretted that decision for one second.
A couple of my family members (surprisingly BOTH doctors!) questioned if I was doing the right thing, and found out after seeing me healthy that I was. An ileostomy is completely hidden under your clothes, so nobody can even tell you have one. All they see is that I'm healthy, happy, and living my life to the full, and that's what really matters.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)