Has anyone here opted for surgery when it wasn't completely a last resort or absolutely necessary? I mean, there were still meds you could try or things you could do but you went for the surgery anyway?
I guess what I mean is... I've had ulcerative colitis for 8 years. That's nothing compared to some, I know. And there are a few medications I haven't tried- Remicade, Humira, Lialda, and things that haven't made it to the market yet. I'm not on my death bed and I'm not having severe complications. But still. When I'm in a flare (which I've spent most of my disease life in, and am in now) I can't go grocery shopping by myself because I know I'll have to use the restroom at least once and don't want to leave my cart unattended. I can't go to social outings where there are no bathrooms. I don't even like to go to other peoples' houses because I don't feel comfortable running in and out of someone else's bathroom. I wake up and head straight for the toilet, and usually get out of bed twice before falling asleep. Even if I find a medication that can control the symptoms, there's no guarantee that they won't come back, sooner or later. And who wants to take 20 pills a day for the rest of their life, anyway? Especially when the potential long term effects range from liver damage to cancer, infertility, bone loss, etc. Who knows if it would even be worth it.
I'm not thinking about
running out and getting a surgical consult tomorrow. I'm just saying... I think at some time in my future I want to opt for surgery, regardless of how I'm doing, because I just want to get rid of my colitis once and for all, and most people live such full lives after having surgery, and it would be so nice to be able to go shopping AND get some lunch in between without worrying about
whether it will ruin the rest of my day because I'll have to run to the bathroom in the store three times before I just give up and go home.
Am I crazy for feeling this way? I mean, most "normal" people would say they wouldn't just give up their colon unless it was life or death and they had to, but sometimes I feel like even though I know it's not hopeless and I can still find a way to "control" the colitis, it still won't be a great way of life and I'd rather just get RID of it altogether.
Sorry for the slightly incoherent rant. I'm a bit tired, and it's a lot to be thinking about
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; oste
openia in hip & lumbar region of the spine from long term prednisone use. Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
4800mg Asacol (Four 400mg tablets, three times a day)