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San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 5/25/2008 6:04 PM (GMT -7)   
 
 
nono  Hi to all of you, (SHAZ)
          I thought that this was a good site to go to,for finding advice and getting help with our ostomy problems. I have typed out at least three notes asking questions to some problems that I have and am having with my colostomy. It seems that no one out there wants to answer me. Please don't take this the wrong way,but I feel like I am being ignored. From what I have read,which has been just about the entire Healing Well Forum pages,everyone has recieved an answer to thier questions.
That is all I want is a few simples answers to mine. I know that I am not a regular,like I shold be,but when I first logged on two years,I got a lot of answers.I will of had my colostomy two years the 9th of June. I am still experiencing proplems,that I am trying to get answers from people like you have been there.If I sound bitter,maybe because I am,a little.
         I really hope that someone out there will back track and find my questions and give me some answers.I sure  would appreciate it. I need answers just like everyone else does. I will be checking back in a week or  two to see if any of you maybe could  helped me. 
 
                                                     I am looking forward to talking to someone soon
                                                                              Sans  

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 5/25/2008 9:08 PM (GMT -7)   

Hi,

I can't really offer you any advice since I don't have an ostomy, but your post puzzled me. I didn't want to believe that anybody here would intentionally ignore any posts. I went back and looked at your other posts and they do have replies, so I'm confused. I did notice that you didn't have a subject line on one of them and one had what looked like a poll that might have accidently been added. I'm sure you'll get some replies. Take care. 


Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son (HLA B27 positive) diagnosed with Crohn's at 17 (now 21). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 5/26/2008 3:53 AM (GMT -7)   
Hi Sans

I can't find any of your posts that haven't been answered either :( Maybe you need to repost your questions?

Please never feel like you're being ignored. A lot of the time, if someone hasn't had the same problem and has no answer for you, they won't post on the thread. It doesn't mean they're ignoring you, just that they can't offer any words of wisdom regarding your situation.
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 5/28/2008 10:41 PM (GMT -7)   
I'm surprised I read your thread because I tend to not read a thread if it doesn't contain a subject. Maybe that's the root of the problem. Anyhow, I did respond to one of your threads.
 
I could tell from this thread that you feel frustrated and alone. Believe me, you're not alone!

San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 6/4/2008 3:26 PM (GMT -7)   
 
  eyes PROBLEMS WITH MUCUS DRAINING FROM MY RECTUM AND VAGINA:
 
       I have been to several doctors and have had several test done,and it seems that no one can find the problem.I am getting ready to celerbrate my second year of my colostomy on the 9th of this month.The past year has been pretty good for me,except for this problem that can not seem to be found.It has been going on for about six months now.I was told when I had my surgery that I would have mucus drainage from my butt every now and then.Then in the last six months I have been going through a terrible time with a brownish yellow discharge draining from my butt and then is started coming out of my vagina.I started wearing the long pads to stop from soiling my underwear,but they did not work.So now I am wearing depends,and they are getting expense.I go through about two a day.When I am sitting around it is fine,but when I am up walking around that is when it starts.I also feel like my buttt is full like I am going to have a bowel movement,but all that comes out is the brownish drainage,and lots of it.I love to go out and walk,and swim.But this has put a hault to that.It has gottin so bad that my butt looks like a diaper rash,and it is cracking open the area around my vagina.I don't know really what to do,except hang around the house.I was supposed to go back to the surgeon that did my colostomy today,(6/4/08)but he went on vacation two weeks ago and has not come back yet,so I am rescheduled for (6/25/08)I just hope that my butt can hang on that long.If any one out there,is having this problem or has had it,please tell me what to do,or maybe what the problem is,so I will know what to expect when I see my surgeon.At this point,all I want is to have my rectum removed and get over with.That way I know that I will not have any more drainage.I'm I wrong for that done.I will 60 years old in August,and I have been through H-ll ever since 1966.I have had to have 28 surgeries since then.Some of them are minor and some have been major.I think I deserve peace of mind with by body,and get it taken care.That you everyone.
 
                                                                 I HOPE SOMEONE CAN HELP ME.
                                                                       SANS
 
 
 
 
     SHAZ, Is there any way that you can shorten your forum,it is getting long and takes a long time to find answers to our questions.  Thank you

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 6/4/2008 7:44 PM (GMT -7)   
If you are having the same drainage from both rectum and vagina I would say you have a fistula. If your docs can't find anything and you're having that much output (and especially if your doc doesn't seem to concern him/herself w/finding the source of the drainage) I would find another doc. I, too, had tons of mucus (at least it felt like tons) from my rectum and it is normal but not normal is discharge from the vagina. Try soaking in the tub 2 or 3 times a day and after going potty put Calmoseptine on the raw skin. It is not a prescription but your pharmacist may need to order it. The cream tingles when you put in on (or kinda burns depending on how raw the skin is!) but it provides an excellent barrier against the discharge. I've had a recto vaginal fistula before and it was murder on the skin. There are meds and surgeries that can help it but in the meantime do the baths and ointment. I hope this helps and that you get in to see your doc soon!!

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 6/5/2008 6:50 AM (GMT -7)   
San's said...
SHAZ, Is there any way that you can shorten your forum,it is getting long and takes a long time to find answers to our questions.  Thank you
Hi Sans
 
Unfortunately, if we trimmed the forum, undoubtedly the posts we removed would be the post that someone else is looking for. The very fact that there's so many posts means that many people have many different concerns.  There is no easy answer to your query :(
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 6/5/2008 9:21 AM (GMT -7)   
San's said...
 
 
 
 
 
     SHAZ, Is there any way that you can shorten your forum,it is getting long and takes a long time to find answers to our questions.  Thank you
Whoah! Please don't change a thing! I only wish this forum was around when I had my surgery in '89. It would have saved me a lot of grief!

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/5/2008 9:26 AM (GMT -7)   
This definitely sounds like a fistula and you should have see a colorectal surgeon for advice and treatment.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/5/2008 6:45 PM (GMT -7)   
I agree that it sounds like you have a recto-vaginal fistula and need to see a colorectal surgeon about it. Mine went away only after I had my colon and rectum removed.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 6/5/2008 6:51 PM (GMT -7)   
 
  yeah I WANT TO THANK ALL OF YOU FOR HELPING ME WITH THE PROBLEM DRAINING FROM MY VAGINA AND RECTUM;
          I have thought all a long that I have some kind of a fistula,but all of the doctors said that if does not show one,that means that I don't have one.I know that something is wrong and I am hoping that the surgeon that did my colostomy will be able to help me.I am going to put a good fight,if he says that there is nothing that he can do about it.
          I have not been home most of the day,and I took an extra pain of depends with me just in case and it is a good thing that I did.I took a zip lock baggie with me and I put the depend in it and I am going to take and cut out the crotch of the one  pair and take it with me and show the surgeon just what I am going through.I thing that is the only way the mayby he will beleive me.At least I hope he beleives me.
          I just want to thank all of you who have helped me with this problems.I guess I don't really know the fourm really works after all.I am not a regular and I know that I should be.I know how,to put a heading at the top of my problem,so when everyone reads it,that will know what it about.
 
                                                                  Thank All Of You Once Again
                                                                              Sans  yeah

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 6/6/2008 6:51 AM (GMT -7)   
It's too bad that not all doctors are empathetic. If your doctor says there is nothing wrong, then it's probably time to look for a new doctor.
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