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Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 5/27/2008 10:52 PM (GMT -6)   
So my step 2 of 3 jpouch suregery is this Friday (Ack!). And the sore that hs plaqued me since I got my stoma has decided to erupt. Like, I don't know what - It just seems to be under my skin now. It hurts and it never hurt before. It's oozing thick yucky stuff, when it used to ooze slowly, and it was clear liquid.
Now I'm scared my surgeon will say I can't have the surgery, or something. I had heard of people who had their stomas moved to the other side of their abs, I'm wondering if maybe my surgeon could do this, to allow this darn sore to heal. It's really bad, and it really hurts. sad
Has anyone had their stomas switched? I'm really hoping this ulcer that NEVER goes away, and is now scaring me, cause it seems almost infected, is not a sign that I will have pouch problems.
I would call my ET nurse, but my surgery is Friday, I probably couldn't even get in to see her until then.
WAHHHH. I want this to be all over.
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy and ileostomy on August 24, 2008.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 5/28/2008 6:12 AM (GMT -6)   

This is not a sign that you will have pouch problems but is there a chance that you could see your surgeon before Friday or plead with your ET nurse for a pre-surgery appt?  If nothing else there might be a delay of a few weeks.  This happened to me at my first surgery as an abcess was found.  Instead of going in for my first step I went in for abcess draining and then had my surgery 3 weeks later.  It will all work out.


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 5/29/2008 12:09 AM (GMT -6)   
Hi sfgiantsjo- I haven't been here for a while, but I was thinking about you and wondering how your skin was doing. Even though a few medical professionals have told you otherwise, it still sounds like PG. I wonder if you should consider seeing a different dermatologist. As I told you in a different post, I saw a bunch of doctors during the span of 3 years before the right dermatologist figured it out. I remember how annoying(and painful) skin problems under an appliance can be. Whatever it is, I'm sure someone will figure it out.
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