Small sore by stoma

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Regular Member

Date Joined Mar 2007
Total Posts : 111
   Posted 6/5/2008 7:00 AM (GMT -6)   
As if he hasn't gone through enough.  We are still dealing with mouth sores that won't go away (they want to do a biopsy), and sores on his scrotum that won't go away.  Now he has a small sore next to his stoma.  This is the first time he's had any irritation due to the stoma or bag or anything (it's only been a couple months).  Is this normal or something that we can treat or do we once again have to call a doctor (just an FYI, I'm really starting to hate doctors).
Mother of 18 year old son
Ileostomy on April 18, 2008

Regular Member

Date Joined Feb 2008
Total Posts : 35
   Posted 6/5/2008 8:01 AM (GMT -6)   


I beleive my 17 yr old daughter had her colostomy around the same time as your son.  She has developed ulcers around her stoma that started out like that.  It is something called Pyoderma Gangrenosum.  I posted on UOAA.ORG about it and had some responses on it.  You can go to that site and look back about two weeks and find it.  Hope this helps.

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 6/5/2008 11:17 AM (GMT -6)   
I had Pyoderma Gangrenosum for many years, and it also started around my stoma. Unfortunately because it was a relatively uncommon skin disorder, it wasn't properly diagnosed for about 3 long years. There are several ways to treat it, and a good dermatologist will choose the best course of action. Treating it early is key. It won't to away by itself.

Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 6/5/2008 11:44 AM (GMT -6)   
I also had a sore by my stoma which wouldn't go away. I just had my stoma moved to the left side of my abdomen because it got huge and wouldn't heal, and began tunnelling under my skin. Be careful! It may be just a little irrststion, but it may not. Watch it carefully, and definitely see a doc if it doesn't go away. For some reason, my dermatologists and ET Nurses and Docs were hesitant to say it was pyoderma.
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy and ileostomy on August 24, 2008.

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