My daughter is scheduled for a step 1 of 3 for a j-pouch on June 27. Next Monday (6/16) we are seeing another surgeon for a 2nd opinion (sort of hoping he does laproscopic since the 1st doctor doesn't). My daughter has been feeling pretty good. I guess you could say she is almost in remission. Of course she is still lowering her prednisone (she is down to 15 mg a day) so it could be (and probably is) false hope.
Anyway, I am starting to rethink the whole surgery routine. I know it is probably for the best. I know that she will probably (definitely?) flare again (and probably during the school year). I know she has almost exhausted all traditional meds. But she is still my baby, it is still a big surgery, it is a long recovery, and it is permanent.
How did you balance both sides when you made the decision to have surgery?
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 25 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!