Thanks for your replies.
Bratcat has tried (and is still on) asacol. She used rowasa enemas, hydrocortisone enemas, and prednisone for her first flare. It took several months but she did get into remission. She started to lower her rowasa and got to every 3rd night when she started flaring again. Upped the rowasa, added back hydrocortisone enemas. Didn't help. Went back on prednisone (highest each time was 60 mg). The GI started her on 6-mp. I know it generally takes weeks to months for 6-mp to kick in but she started on the way to remission almost immediately. We all figure it was the prednisone working. Finally felt like she was in remission and BAM! started flaring (6 months from when she started flaring with her 2nd flare so her 2nd remission really wasn't that long). Started the enemas again but this time no change using them. Started back on prednisone...again. From 40 to 60 mg. Added Remicade. Felt good after the first infusion. Started lowering her prednisone. Had her 2nd infusion. Felt good but not like it was a wonder drug. Had her 3rd infusion. Still didn't think it was the "remission" drug. And so, here we are, deciding on surgery. Her last 2 colonoscopies have shown dyspasia but the pathologists feels that it probably is due to the inflammation (haven't been able to get a colonoscopy when she is in remission).
We kind of feel that she is at the end of her meds. It looks like prednisone is what is really getting her into remission. And she missed 9 weeks of school with the first flare, 9 weeks with the 2nd flare, and 7 weeks with the 3rd flare. Logically that can't be the way to live. But surgery seems (and is) so drastic. Aaaccckkk!!