Jo, hugs to you. I don't have UC nor have I had surgery but I remember this happening after each of my children's births. Thirteen days after each I hit a wall. Couldn't get the energy to get dressed, walk to get the mail, nothing but nurse them. Each time this happened, my mom wouldn't take no for an answer. She made me get dressed (even in sweats), made me sit in a chair on the patio, made me walk to the end of the driveway with her and back again. It wasn't much but it was her way of making me change my scenery. I remember thinking I couldn't even muster the energy to do any of those things. Over the next few days, she would make me get in the car with the baby (and any kids in tow) and we would drive to the mall (or supermarket). Mind you both of us hated shopping. But she would help push/pull me back into civilization.
Do you have anyone around who will be your support? Someone who will make you get moving, take that short walk with you? It's hard, but try to remember to take one day (or even one hour) at a time. Try to find something positive/happy about the day. Maybe you were able to eat something that you haven't for awhile. Maybe you were able to get up out of the chair without too much pain. Whatever it is, enjoy the moment.
I want to thank you for bringing this up. It never occurred to me that someone would go through this after surgery. It is something I will look out for.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!