perineal abscess.....anyone with answers??

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sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 6/16/2008 5:37 AM (GMT -7)   
Hi, ok...I have a permanent ileostomy, have had it since '93 and it has been pretty good with the usual blockage here and there. But, I had an abscess a few years ago and had a nightmare emergency procedure in the ER to remove it....now I have another perineal abscess and this time they want to surgically remove it and then have a plastic surgeon fill in the space using a gracilis flap. Have anyone ever had this surgery? Any idea what I should expect? They are doing it in two surgeries 4 days apart....I am kind of freaking out over it. I meet with the surgeons next week to ask all my questions, but would really appreciate hearing from someone who has experienced this before.
Happiness is a journey not a destination - Souza


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 6/16/2008 12:04 PM (GMT -7)   
sparkn,
 
I have Crohn's and had one very bad perianal fistula which eventually formed an abscess...and it was one of the most painful, horrendous things that I had to deal with since being diagnosed with Crohn's.
 
So, I am very sorry to hear you are having problems with abscesses.... :(
 
I did not have the surgery you said you are having, but I had something similar--when i had my ileostomy made, the surgeon removed my whole rectum and anus (basically, "carved out" my bum hole-), and sewed my bum shut.  He said that this wound is very difficult to heal, and it takes a long time.  From what I understand (though I am not a doctor, of course!!), the gracilis flap that your doctor mentioned is supposed to help this type of bum wound heal faster by replacing some of the "bum muscle" they are removing.
 
Even though they sewed me shut, my wound opened up a good bit later, so I have to put a bit of gauze up there to keep things dry and clean (the wound lets out a little bit of pinkish fluid, so the gauze catches this) until it heals more fully.
 
After my surgery, I was pretty much numb down there for 2 weeks or so, but after that, it was pretty sore and hurt to sit, so I laid on my side a lot.  the good news is though, now that I don't have a rectumor anus, I can't get anymore periana abscesses!  :-) :-)
 
I wish you luck in your surgery!  Hang in there!!

sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 6/16/2008 12:42 PM (GMT -7)   
Hey Little E,
Thanks for replying! I agree, the abscess is awful, the last time I had the abscess I couldn't believe how painful it was....and I have been through a lot, many blockages, surgeries, etc....but man, that abscess and draining of it was AWFUL! I also had my rectum removed over 10 years ago, totally sewn shut like you, but since I am getting another abscess he wants to really 'clean it out' and fill it with good tissue, which is I guess the flap thing. Do you think this is going to be like recovering from the proctectomy (when the rectum was removed)?? Man, I hope not....that was a painful surgery and recovery :( Thanks again for replying...it helps knowing someone has gone through something similar.
Happiness is a journey not a destination - Souza


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 6/17/2008 2:41 PM (GMT -7)   
I've had 6 of those nasty surgeries and all I can say is I feel for you. My bum looks like an exploded mine field. At least since they removed my rectum, I have not had any more problems (with abscesses). All I can say is that it does take awhile to heal, and yep. Not very comfortable. While it took much longer to heal after the rectal removal, I am happy I no longer have the abscesses, don't wear mini pads and this year for the first time bought myself a white pair of pants!

Good luck and let us know how you are doing!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/17/2008 4:35 PM (GMT -7)   
i can't help with your problem, but i just wanted to tell you that i hope you get to feeling better soon and i will be thinking of you!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/18/2008 1:08 AM (GMT -7)   
I've also had a perianal abscess, and agree that it was the most painful thing I've ever experienced!

I never had a problem with one again after having my colon and rectum removed, so I'm sorry you're having to deal with this. sad

I hope these surgeries take care of it completely, so you never have one again.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 6/28/2008 8:13 PM (GMT -7)   
Thanks for all of your responses! I am so confused though, I had my rectum removed back in 97 (I think 97!), but it seems like those of you w/out the rectum stopped having the abscesses, why do I still get them!??? Argh! I am hoping it is not as painful as the surgery to close up the bum...that was pretty awful. I met with my regular colorectal surgeon and the plastic surgeon..whoa, these surgeries sound rough. The first one is with the colorectal surgeon (but the plastic guy is going to pop into the OR to check things out..) who will take out the abscess and scrape everything clean, take out all the scar tissue, etc....then insert a big sponge with a drain and I think it will be suctioning stuff out for the days between surgeries, that sounds fun. Then on the fourth day the plastic guy removes my gracilis muscle from my thigh and pulls it up into the rectal cavity....then sews it in place and closes me up. Then, I have to stay in bed for 3 days and then no sitting for 3 weeks --I can stand or lie down. :( I guess I should feel lucky I have an ostomy because he said I couldn't even sit to pee...I have to do that in the shower. I can only walk with baby steps, he actually said no spreading my legs....which I thought was actually pretty funny...good thing I have know him a long time, he is ok with my immature sense of humor. Then after 6 weeks I can start getting back to life and doing regular things. This really doesn't sound fun, any ideas on things to do while recovering? Favorite dvds to watch? Well, that is my update! Thanks again for the responses.
Crohn's Disease since 1991, 2 rounds of ng tube feeding, Ileostomy since 1993, Proctectomy in 1997, several resectionings & stoma revisions, many blockages and a few abscesses and surgery to remove them. Medications used at one point...prednisone, 6MP, Flagyl, Asacol, Pentasa, Imuran, Cipro, Rowasa, Cortifoam, Methotrexate


Happiness is a journey not a destination - Souza


sosueme
Regular Member


Date Joined Mar 2007
Total Posts : 53
   Posted 6/28/2008 10:47 PM (GMT -7)   
Sparkn, so sorry to hear of your up and coming surgery, I myself have had this kind of procedure you are talking about. Way back in 87 when I had my perm. ileo done my rectum was removed at the same time , back then it was left open to heal from the inside to the outside , packing was done twice a day ,well after many months and many surgeries to get the darn thing to heal (it didn't) a muscle from my inner thigh was graphed to the stubborn ex-rectum area and finally after a few months things with that were fine. Altho I did develop a huge ulcer on the area where the muscle was taken, this required more packing and after a few months because the sore would not heal , I had to have a skin graph done on the sore and finally 5 years from start to finish I was healed. Extreme case so please don't think this well happen to you. I was told that I would not notice any difference with out the muscle in my leg , but I do,my leg swells a lot and aches when I stand to long ,it's the swelling that hurts the most tho. Good luck in your surgery ,I really hope it will help.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/29/2008 9:40 AM (GMT -7)   
Best of luck to you in your upcoming surgeries. Please keep us posted.

I had my rectum removed when my ileo surgery was done in '84, and it was really a painful process for me. Laying and standing was about all I could do for 6 weeks, but I was really, really underweight and had no padding to sit on!

DVD's - We just watched the Bee Movie - cute! Do you have a favorite TV series that you haven't watched on TV, like Grey's Anatomy or The Office or Scrubs? Maybe you could get several seasons of them on DVD and catch up on them. Kind of mindless tv, which is good if you are on any pain meds! I was never very interested in reading books when I was recovering cuz my eyes couldn't stay focused well enough on the meds!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 6/29/2008 6:10 PM (GMT -7)   
Sosueme, did they say why you have swelling now? Yikes, I am so not looking forward to this....I love to ski and am hoping I can still do that.... Great suggestion peggy, my last surgery I watched the whole six feet under series. I will have to cue up my netflix for something like that with short episodes to help my short drug enduced attention span, I agree about the book thing, it is too hard to follow a plot after surgery. Thanks for all of your support!
Crohn's Disease since 1991, 2 rounds of ng tube feeding, Ileostomy since 1993, Proctectomy in 1997, several resectionings & stoma revisions, many blockages and a few abscesses and surgery to remove them. Medications used at one point...prednisone, 6MP, Flagyl, Asacol, Pentasa, Imuran, Cipro, Rowasa, Cortifoam, Methotrexate


Happiness is a journey not a destination - Souza


sosueme
Regular Member


Date Joined Mar 2007
Total Posts : 53
   Posted 6/30/2008 7:43 PM (GMT -7)   
Hi Sparkn................I was told I wouldn't notice any change in my leg, but yea I do. The swelling is worse in the summer than the winter heat I think has a lot to do with the swelling, sitting to long on a car ride or plane were you don't move around a lot i can lust feel my leg swelling and getting tighter ,foot gets real fat and swollen to the point of having to loosen the shoe.I have even tried cutting back on fluids but you run the risk of dehydration, not good either drs. don't think it serious issue so they just poo-poo any of my concerns.I have learned to live with it . After a night of sleep the swelling does go down so times even to the point were my legs look the same size. But the swelling will start at my foot and work it's way up to the knee and beyond ,you can defintily feel the swelling progressing up my leg sometimes passed the knee, a real tight and skin stretching feeling and you can feel it moving up the leg. Ask your surgeon about any concern you may have , hope things go well with you, oh and as i remember can't walk on the leg for a few days after the surgery must use a wheel chair for a few days.Winter time my leg is almost normal of the time be patient things will heal, as i recall i even removed my own stitches and that one LOL they had used a running stitch under the skin so it came out fine. good luck ,but do ask questions and stress any concerns you my have.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 7/2/2008 2:14 PM (GMT -7)   
the rectal removal with flap of muscle sounds like the surgery that has been making me avoid setting a follow up appt with my colorectal surgeon!

it is nice to hear that so many others have made it thru ok though. It just bums me out that the healing process will take so long. I have my "temp" ileostomy now for over a year, and it's really up to me when I want to have them take out the rectum, things are getting much better, but they aren't getting much worse, so I have been stalling the decision, especially since I will be moving to Las Vegas soon for work and don't want to take the time off till I get settled in and established, and pass my adjuster's license exam.....

I guess I am part of the "mine-field-for-a-rear club" too, justjenjen! good luck running the cheer squad!
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?

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