QUESTION for THOSE WHO HAVE A COLOSTOMY BAG BECAUSE OF INCONTINENCE AFTER SURGERY?

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2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/17/2008 9:55 AM (GMT -7)   
Hi all
 
Just need to find folk out there who had a colectomy done because of SLOW TRANSIT CONSTIPATION, BUT ended up having to have a colostomy bag because of incontinence.
 
I really need to know the ratio of people who have had successful outcome of t/c as I am scared to have one because i was told 50% of people who have this surgery become incontinent.
 
Thanks so much
 
karen x
 
Previous diagnosis/surgery:
 
2003: Rectocele/cystocele - Pelvic floor repair surgery;
2006: Mucosal prolapse/Obstructive Defaecation Syndrome (ODS); Slow Transit Constipation - STARR surgery;
2007: Partial volvulus (cause of ODS?) - Sigmoid resection. Result: immediate worsening STC;
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once) or be in discomfort. 
 
Scared to have TC as told I could become incontinent - can't get my head around the fact I might require a 'bag' :(


Booka
Regular Member


Date Joined May 2008
Total Posts : 60
   Posted 6/17/2008 1:07 PM (GMT -7)   

Hi 2much2bear...

I was not given that % at all. My daughter is 11 yrs od and has been fighting the same thing all of her life...tried various s/x,medication etc and nothing worked. she just had a TC on 6/5/08. We were very concerned about being incontinant also...we didn,t want to trade one problem for another...but her doctors told me that people that have rectum and anus removed have that problem,and if she did have a problem w/ going to much they can controll that w/ medication . Her docs said it is alot easier to controll that problem,and if they conect your small intestine to the rectumyou should have controll...they had to take most of my daughters rectum,so incontanace is a little  bit of a concern...but right now nothing is working,because things are still asleep down there...we are considering a bag if this s/x does not work...she wants a good quality of life and as far as she is concerned,if that means having a bag she is willing to do that...she can do more w/ a bag than she can do now w/ out a bag and being so sick all the time...anyhow hope thats helps a little...Talk more any time.

Krista


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/18/2008 2:42 AM (GMT -7)   
Thanks for the reply Krista

I cant believe it - she hasnt opened her bowels for six weeks poor girl! what a worry for you. I do hope something is done soon for her she must be in such discomfort..
all my thoughts :) x

Karen
 
Previous diagnosis/surgery:
 
2003: Rectocele/cystocele - Pelvic floor repair surgery;
2006: Mucosal prolapse/Obstructive Defaecation Syndrome (ODS); Slow Transit Constipation - STARR surgery;
2007: Partial volvulus (cause of ODS?) - Sigmoid resection. Result: immediate worsening STC;
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once) or be in discomfort. 
 
Scared to have TC as told I could become incontinent - can't get my head around the fact I might require a 'bag' :(


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 6/18/2008 3:39 AM (GMT -7)   
I had a TC due to colonic inertia and although I had a little incontinence (hardly any....just wore a  pad) in the hospital after my ileus developed I have never had one accident since surgery. I feel if you do well with the anal manometry test and your muscles are stong enough that you will not have issues. I think this should be a complication you should not worry too much about:)

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 6/18/2008 3:52 AM (GMT -7)   
If you're talking about an ileo-anal anastamosis (aka pull through operation), this operation works better for kids than adults. Because there is no rectum or 'holding area' for faeces adults tend to experience incontinence after this op whereas kids bowels tend to adapt more and they're able to 'hold' it better. For this reason it's rarely done on adults anymore as the majority do end up having to have an ostomy later on due to incontinence (see http://www.pullthrunetwork.org for more info)

If you're talking about an ileo-rectal anastamosis (aka j pouch) then most adults tend to have great results with it (although I don't think this is the op you're talking about cos the 50% figure for adults is nowhere near the reality - the majority of adults do maintain continence with this surgery).

Good luck with your decision.


I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/18/2008 4:52 AM (GMT -7)   
xtreme and shaz -
Thanks for the encouragement - i did have some anal testing done, and all was ok - just the transit study. i have a bit of incontinence at times (about once a month) plus urgency when i need to go (huh but hardly much) as i have to take such large quantities of senna or i dont go at all. Lately things are much worse.

Shaz, I am talking about the surgery where the whole large bowel is removed only, and the small bowel connected to the rectum - leaving the rectum intact - as i have slow transit and not any disease of the bowel.

Thanks so much. keep the posts and poll coming!
karen
 
Previous diagnosis/surgery:
 
2003: Rectocele/cystocele - Pelvic floor repair surgery;
2006: Mucosal prolapse/Obstructive Defaecation Syndrome (ODS); Slow Transit Constipation - STARR surgery;
2007: Partial volvulus (cause of ODS?) - Sigmoid resection. Result: immediate worsening STC;
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once) or be in discomfort. 
 
Scared to have TC as told I could become incontinent - can't get my head around the fact I might require a 'bag' :(


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 7/3/2008 6:22 AM (GMT -7)   

IS THERE ANYONE OUT THERE WHO CAN TAKE PART IN THIS POLL?? confused if not i take it that everyone who had a total colectomy didnt become so incontinent that they needed a bag then???? :-)

thanks - i really need to know.


 
Previous diagnosis/surgery:
 
2003: Rectocele/cystocele - Pelvic floor repair surgery;
2006: Mucosal prolapse/Obstructive Defaecation Syndrome (ODS); Slow Transit Constipation - STARR surgery;
2007: Partial volvulus (cause of ODS?) - Sigmoid resection. Result: immediate worsening STC;
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once) or be in discomfort. 
 
Scared to have TC as told I could become incontinent - can't get my head around the fact I might require a 'bag' :(

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