Still Having Problems with Drainage

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Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 6/19/2008 3:26 PM (GMT -7)   
       I went back to my surgeon that did my colostomy yesterday,06/18/08,and still got no answer or satisfation as to what is going on.I keep getting bounced around from this doctor to that doctor,and they are all supposed to be specialist in the field of rectum and the colon.They just tell me that if I had had all the test done that I say have been done,then there is nothing that they can do for me.
       If I just sit around all day long then I am fine,but I go for a walk or go shopping,that is when the mucus begins to drain.I am still getting that full rectum feeling,and when I go to the bathroom,I am letting out about a 1/8 to a 1/4 cup of mucus.I sit there waiting for more to come,giving just a little push,in hope to get more out.Now I have found that what ever is going on is pushing my bladder out.I have already five bladder surgeries,and I have been told that there is nothing else that can be done about that,yet all of the specialist I have seen will not recommend me to a good GYN or someone in the field that can and will remove me bladder and give me a Urostomy.My vagina is bacisly sewed up from all of the bladder surgeries I have had.I don't know what else to do,or who else to turn to.I am desperate need of help in a bad way.I am getting tired of being tossed around like a football,and no one can or will do anything about my problem.PLEASE TRY AND HELP ME!!!
       Thank you and I AM looking forward to hearing from someone who can help me get help with my problem and get through it.
                                                                     THANK YOU TO ALL THAT CAN HELP
                                                                               SANS nono

Regular Member

Date Joined Apr 2007
Total Posts : 385
   Posted 6/19/2008 10:15 PM (GMT -7)   
Sorry to hear that you're still having problems. Where are you located?

Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son (HLA B27 positive) diagnosed with Crohn's at 17 (now 21). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 6/19/2008 11:45 PM (GMT -7)   
I think a lot of doctors specialize in the rectum because that's where their brains are! You need to meet with a more sympathetic doctor who can give you the attention you deserve. Do you live near anyone with an ostomty that can recommend a different doctor? If not, where do you live? Perhaps someone here can recommend a better doctor. You're abviously feeling very frustrated and alone right now. There's plenty of support here for you.
Also, don't forget to put a subject in your threads. That way we can make a distinction between your threads. Many here, myself included, sometimes overlook threads that don't contain a subject.

Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 6/21/2008 6:28 PM (GMT -7)   
            I am so confused and really don't know where to turn at this point.I have been shifted from doctor to doctor and am really getting of it.All I have is Medicare to help pay for all of these bills that are adding up fast.They  pay 80%,and I have to pay 20%.I know that 20% does not sound like much,but when you are one a monthly limited income,it adds up fast.
            The both of you asked where I live.I live in Martinsburg,West Virginia.But unfortunately,this side of West Virginia does not have doctors that are considered specialist,so I have to go all of the way to the other side of West Virginia, to the University of West Virginia.That is where my Urologist is.It is about a 120 mile drive one way.I went to my surgeon in Baltimore the 18th so see if he could help me with my problem,he said that is not his field.He just told me to call my Urologist and him if he knows of any good Colon/Rectal Specialist in the hospital where his  practice is located at.I called him and get a name of Colon/Rectal Specialist,but I have not made the appointment yet.I am trying to get a secondary insurance card to help with some of these bills.I should know by the 15th of July.I just have so many problems,I just know which one I want to attack first.I know that this should be my first priorty.I just want to find out the problem and have it taken care of as soon as possible.
            I feel like my summer is already ruined.I am scared to go the pool and get in the water and take a chance of the mucus leaking out,and possibility contaminating the water.I'm I wrong in thinking like that,or is there no chance of that happening.Once again,I don't know what to do anymore.
            That is all for this time.I thank you for answering my cry for help.I hope to hear from anyone who ready this soon.
                                                                                                Once Again, Thank You
                                                                                                       Sans confused

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/21/2008 7:51 PM (GMT -7)   
i really don't know how to help you, other than to tell you that i will keep you in my thoughts and i really really hope you get some answers soon!

Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 6/23/2008 1:32 PM (GMT -7)   
yeah  Thank you summerstorm,for anwering me about my Rectal/Colon discharge,problem. I to feel like I am at a dead end zone,but I refuse to stop trying until I have really hit dead end.I know there is a problem,other wise I would not be going through what I am.I truly beleive that there is a reason for every thing.That has to be doctor out there somewhere that is willing to go to the end for me to find out what is going on.My only problem is that I can not start to tackle it until sometime in the middle of the next (July) month.I will know by then if I will qualify for my secondary insurance.
     I thought that after I had my colostomy two years,the 9th of this month,that all of my problems would be minor.For me there is no such word as minor or simple.It always has to complicated or the problem can not be found.That is the story of my life and it always has been.I will certainly keep all of you informed of what I find out when I get to see the new Colon/Rectal Specialist.I hope that I will be able to give all of you good news.
     I want to thank all of you for your prayers,and hope that we can stay in touch.
                                                                      Once again,Thank you

Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 8/1/2008 7:32 PM (GMT -7)   


smurf Still the same problem with my drainage.

     I went to my GYN,about a month ago and he told me to get in touch with my Urologist and ask him if he could recommend me to a Uro Rectal/Colon Specialist.I have an appointment with him on September 4th.I will also have to see my Urologist on September 5th.Those two doctors are all the way on the other side of West Virginia where I live.They are over at the University of West Virginia Teaching Hospital.Then I am have a appointment on the 12th of this month to see a specialist on having a colonoscopy done.They did not say if they wanted it done through the stoma or the rectum.I guess this doctor will decide which way to go.I am scared of having it done through my stoma.When I have been seen by the two doctors,they will get together and decide what they are going to do about it.If they do anything,my Inter Stem that controls my bladder will have to come out first.I have been told by my GYN,that if they do anything with my bladder,they will have to scrape the scare tissues away,which will make me bladder fall down to a point,and then they will have to remove the sling that it is in and undo all the stitches that I have had done through out all of the surgeries I have had in that department.When all is over,my bladder will totally be down and just about out of my vagina.I  don't know if they will remove it all together and hook me up to Urostomy,or cut my above the abdomen and pull it completely back up that way and start all over.I have no idea,but I think that this Inter Stem is what is giving me so many U.T.I.s.  As for my rectum they may have to remove all of it or just part of it.That I don't what they will do either.I do know that I hate waiting.I know what I want to be done,but none of the doctors will listen to me.They keep me,"you don't want that done"My bladder is rotten,and I have been told that many of times.As for rectum,I can not keep on with the feeling that my rectum is full not long after I eat.I go into the bathroom and about an eighth to a quater of cup of light to dark brown stool like mess comes out of me.There are times when I have to sit there and push like I was constipated,but I already have a permanent colostomy,and am having no problem in that depertment,but I know it is not doing my bladder any good to be  pushing.So I know that there is something deffinetly wrong in that department.Everywhere I go I have to either wear a depend,two pads,or line my underwear with paper towels.I am also getting mucus from my vagina.So I am getting it from both.I just want something  permanent done.I'm I wrong for wanting my rectum remove or closed up and having a Urostomy done,with all of the problems that I am having.All of the tests are coming back saying that there is not a fistula any where to be found.What is wrong with the picture?

  If anyone out there can help me or have any suggestions,I sure would appreciate your advice.This has been going on for far to long.

                                                                    Thanks for reading and listening

                                                                           San's confused sad

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 8/2/2008 4:19 PM (GMT -7)   



Im sorry to hear about ur situation, i wish u'd have put a subject in ur post, i probably would've read it sooner.  I have the similar issue, with the drainage from my vagina and rectum.  HOwever, i have an ileostomy  and i still have my colon, so the mucus from the rectum is normal.  The reason for my ileostomy was because of my recto vaginal fistuals, which were causing me to pass stool from my vagina, and air.  They were hoping with everything being diverted my fistulas would dry up, but so far, this hasnt been the case.  So my doc is suggesting that i have my rectum removed.  I'm not too keen on that idea just yet, as my quality of life is better, and im not really rushing to make any permanant decisions right now.  I also dont want another surgery anytime soon. 


I dont know ur complete history, but my question is, did your doctor suggest removing your rectum? I mean, you have a permanant colostomy if i read correctly, which I would think means that you won't be using your rectum any more any way...( if im wrong mayb  someone can correct me)my doc said that b/c im still having drainage, although i dont think its as much as ur having, theres a sign of infection still going on in my colon, which is why he would remove part of it as well.  I'm no doctor, but is it possible that there's sometype of active infection in your rectum thats causing the drainage in your vagina? do you have fistulas? Mayb these are some questions you can ask whatever doctor you decide to go to.  Also there are other alternatives for fistulas if that is what you have.  The surgeries arent that effective or so i hear. but my gastro was telling me about some type of fibrous glue that seems to work ok....i dont know but i hope u get answers soon!

25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 8/2/2008 6:17 PM (GMT -7)   
     To start with I want to say that I am sorry for not putting a tltle to my thread.I will try to remember to do it everytime I write.
     I was at work on day,when I got a funny feeling and went into the bathroom,and as I pulled down my underwear,I found a small hard stool in my underwear.I came back and told my female boss what was going on,and she told me that maybe I had better go to my doctor or hospital right away.I was able to get into see my doctor,and he send me to a gastro doctor.He set me up for a series of test,and they all came back negative.So then he sent me to another surgical specialist,and he put me through a few test and could not fine anything either.So then he did surgery on my stomach,by cutting me right down the center of my stomach,looking for a fistula and could not find one.So he just dismissed me,and said that there was nothing else that he could do,seems how nothing was found.As time went on,things started getting worse.I was not able to control my bowel movements,and was passing gas out of my vagina.I went back to my gastro again and told him what was going on.He kept putting me on all kinds of medicine.All of this happened when I lived down in Maryland.As soon as I moved to West Virginia,it started all over again and kept gettting worse.So I went to my doctor and he referred me to a gastro in the same building as he was in.Well I had to go through more testing.I told this gastro that I was tired of going through all of these different kind of tests and having them come back negative.So once agian,I got shifted over to a specialist over is Baltimore,who I have to sit down and talk with and answer some of his question.From there he sent me over to another part of Baltimore to see the surgeon that did my permanent Colostomy.Everything went well,for the first year.After that it has been all down hill since then.I started out having the usual mucus drainage which I was never told about.Then it still begun to get worse.I would be walking out in public,when all of a sudden,I would feel my underwear wet and my butt also felt funny.I would stop into a rest room,and I would find that now I was draining mucus really bad,when I would go out walking.That got to be embarassing,as it had a terrible oder to it,and it was enough to show right through my underwear and my pants or shorts,to where it could be seen.I found myself putting paper towels to cover the mess in my underwear,and then drying my underwear under on of the hand dryers.I put up with that,but still complaining to me surgeon and my stoma nurse.They all said that it was normal.As time went on,I started noticing that no long after I ate,I would feel my rectum feeling full.I am still having the problem.Anyway,I go to the bathroom and as soon as I sit down,I drian out about 1/8 to 1/4 cup of the brownish stool looking stuff in the toilet.Then I would continue to wipe and still a mess more would come from my rectum and then I would wipe my vagina and would have the yellowish mucus from it.So I was wearing depends for a while,but I sweat so much down there that I was breaking out in a rash.So I changed to pads,well I had to wear two of them.One for the front and one for the back.That did not work either.So now when I go out,I just line my underwear with paper towels and hope for the best,and always take extras with me.What a life.I have an appointment with a colon/Rectal specialist on the 4th of September and on the 5th I will be seeing my Urologist.I hope that they can get together and come up with a permanent solution to my problems.
   When I went to see my GYN last month,he said that he sent a lady to a specialist with the same problems as I am having and she came back to him later and told him what she had done.He told me she said that they removed her rectum.I don't care what they do to me as long as it is a permanent fix.I am tired of these temperory fixes.I also have what is know as an Interstem Implant in my right butt,that controls my bladder.I have had that for three years now,and have two new ones put in and they are not working.I have had four bladder surgeries and I have been told that my bladder is rotten and needs to be removed,because no matter what any doctor dose to hold it up in place or evening this Implant,nothing seems to be working.It needs to come out and have a Urostomy done.I can not get a good nights sleep for getting up every two to three hours to go to bathroom,no matter what position I am laying in.Still out of all the testing that I have been through,there still has not been a fistuls found.I know that there is something wrong but the doctors can not seem to find it.If these doctors can not find the cause,I am really going to go off on someone.I have been patient long enought.I take it much longer.
   Well you did not know my story before,but I hope that you understand know some of what I am or have going through.
   Once again,that you for reading this and listening to me.
    All of you have been so kind and understanding.
                                                                                     Thank You
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