Good luck with your doctor's visit!
Everybody seems to have a different story so I am not suprised the doctors dont agree on the stats.
Unfortunately for me I have not had much luck after surgeries.
I was dx'ed with Crohn's in October 2003 and by April 2004 I was in and out of the Emergency room every weekend because of the pain.
I did not have much choice as prednisone was not working and I had my first surgery Easter of 04 (they removed 2ft of small intestine).
6 months later the disease was back and had spread to 50% of my small bowel. I was put on Prednisone again and a year long wait list for a GI Specialist.
The specialist put me on Imuran which didnt seem to work and unfortunately in September 2006 I developed a perianal abscess and still had active crohn's.
A drain was inserted and I was back on prednisone waiting for the abscess to heal and my disease to settle down. Nether of those things happened.
The 6 months spent with a drain in my perennum were the worst 6 months of my life!
In February 07 the surgeon and I decided that a temporary ileostomy was the next step.
The abscess, my butt, and my guts needed a break.
After this surgery I was disease free and the ileostomy was supposed to be reversed after 6 months - but my disease came back and the abscess did not heal.
Thats when they put me on Remicade.
Finally I am starting to feel better.
The abscess has not healed but is not causing me any pain.
I have been told it may never heal.
My disease is in remission - for now.
I am on a wait list to have my ileostomy reversed.
I was 30 when they gave me my ileostomy and was devastated when I was told that was the next step - things are different now and I am enjoying the freedom of not sprinting to the bathroom after every meal.
I wish you the best of luck - and I hope all these stories do not scare you, but give you strength instead!
You are definitely not alone!
Dx/ed October 2003,
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6+ months.