Dear Sweet Cheeks, 39Forever & TJCCRN:
Wow. I can't believe how our stories are so similar! I had necrotising pancreatitis which resulted in surgery that removed 2/3 of my pancreas, gallbladder & parts of my large & small intestine. I was touch and go for months (I was in the ICU for 6 months plus!). I was so physically debilhatated that I could barely sit in a wheelchair. I was down to 115lbs. and I'm 6'3"! But over time I healed.
I had the ileostomy for almost 3 years. I was feeling good, I returned to work and started to resume my nnormal life (except for the bag). However, I did have persistent hydration problems and I had a PICC line and was taking an IV of H20 daily. I decided to go ahead with the reversal.
The transition has not been without complications. First I was in the hospital for 18 days instead of the 7 I originally planned. I lost about
20 lbs. and I still have persistent diaharhea (but it's getting better). Now that I am starting to feel better I'm beginning to feel good about
my choice. There were times, however, when I had my doubts. I'm still a work in progress.
As was stated before, I think preparation is the key to the reversal. Build yourself up as best as you can beforehand and do lots of investigating & research. Prepare yourself mentally. It's really tough to take on the surgery and recovery when you have already gone through the "ringer". But, try to concentrate on the long-term benefits and realize that things will get better. My hydration problem seems to have been solved and I feel stronger each day.
Thank you all for sharing your experiences. I'm sorry we all have to go through this but it is good to be able to speak to others who know what we are going through.
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection.