anyone in canada?

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Bennick
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/7/2008 3:41 PM (GMT -7)   
Hi all
I have to first say thanks... I'm feeling pretty fortunate, because lots of you seem to be worse off than I am.  I hope you all find some solutions.
 
I am 39 and a former laxative abuser/non-eater.  As a result, I now suffer (like most of you) with chronic constipation and left side pain.  I have been told I have gallstones, scattered diverticulosis, colonic inertia, no motility/peristalsis in the descending, several liver cysts, redundant colon, blah blah blah. I've done the barium x-ray, the sitz marker, had flex sigmoidoscopy... too many to even remember at this point. Every time I go back, they find yet another something wrong, but no solutions. I can no longer have a bm unassisted, and like so many of you, I have tried all the drugs, naturopathic remedies, whacks and whacks of fibre and water, lactulose, senna, EVERYTHING.  I'm currently using a supplement called Bowtrol that seems to be working fairly well; it is a purgative, which I don't really like taking, but it seems to keep things moving fairly well.  My surgeon here (remote canada) says sub-total colectomy as a last resort, but it seems to be something that is fairly routine in the states.  If anyone is comfortable letting me know where you are and who your docs are, I'd appreciate it.  Maybe I'll come down there for some help.  It really is so frustrating because you just feel so helpless and sick and uncomfortable all the time.  I just got back from a week of vacation with my kids, and I forgot my supplements and had a horribly painful time.  I look forward to hearing back from any of you willing to share your info so I can do some research.
Thanks!

Post Edited (Bennick) : 7/7/2008 4:45:05 PM (GMT-6)


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 7/8/2008 10:20 AM (GMT -7)   

Hello Bennick!

I am in Calgary Alberta and under the care of an amazing GI Specialist for my crohn's disease - I had to wait a year to get in to see him but I understand the wait time is quite a bit shorter now.

My family doctor had to refer me to him - his name is Remo Panaccione.

He is one of the best GI Specialists in North America and has a team of nurse practitioners who actually take the time to talk to you about how digestive illnesses can affect your whole body.

Also,

A new Motility clinic has opened up at the Foothills Hospital here in town.

They specialize in digestive Motility disorders - I tried to find a link to their department but I think they are too new.

Here is a link to a news article about it.

http://www.canada.com/calgaryherald/news/reallife/story.html?id=a3f2ba2a-7115-46c2-8caf-c4604889f84e&p=2

Good luck!


Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6+ months.
 
 
 


Bennick
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/8/2008 2:07 PM (GMT -7)   
Wow, Angela, thanks for that info!  I'll do some research and get back here after I find a few things out.  Thanks so much for the reply.

XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 7/8/2008 2:37 PM (GMT -7)   

Hi Bennick.....

I am 28 and had a total colectomy for colonic inertia. I had my surgery here in Grand Rapids, MI. I was under the care of the Ferguson clinic through Spectrum Health. My surgeon was amazing and we have top-notch medical care here in what they call "medical mile." My surgeons name was Nadav Dujovny ( not sure his nationality, but he is 36 and does not sound foreign). I am doing rather well.....few bumps in the road, but nothing else worked so my option was surgery. Take Care

Lizzie


Bennick
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/8/2008 3:58 PM (GMT -7)   

Hi Lizzie

Thanks for your info.  When you say nothing else worked, what else did you try?  The gammet of drugs and diet changes, I'm guessing?  I don't seem to be getting offered any options other than the surgery, which I've been really trying to avoid.  Just lots of "come back if you're not feeling better" which I keep doing, having more tests, finding more things wrong/not functioning, but still no one is able to DO anything.  My surgeon said a sub-total would be the last resort.... I feel like I was at the last resort a year ago!  It makes sense in my head that removal of the redundant portion of my colon would make things better, but what do I know?  I see my surgeon here tomorrow, so maybe I'll get some options from him then?  Feels odd to hope for a big operation, but it really is so hard for us to live life normally.  And I'm SOooooo glad to say "us" because I've been feeling very isolated with this.  I'm going to google your doc and hospital to see what I can find.  I come from the land of socialized ("free") medical, so it would be a huge expense to come down there, but we're willing to do it if we need to.  Thanks again for the reply.  Are you feeling well these days? When did you have your total?  If you don't mind sharing the details, I'd be interested to hear how it all went for you. 


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 629
   Posted 7/11/2008 8:00 PM (GMT -7)   
kitchener, ontario here
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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