what annoys you?

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summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 7/7/2008 8:08 PM (GMT -7)   
Before i start this, i want to make it clear i am not trying to scare newbies or people considering ostomies.  I actually hope it will help them.  If the things that annoy other people are as silly as the ones that annoy me i think it will help them
 
One of the things that annoys me is that i had to start putting things in my left pocket.  I probably wouldn't have to do this, but i am really bad to put everything in my pocket, and after i stuck a pair of earrings in my pocket, (i somehow got out of a leak) i realized i better move it over ot my left one!
 
Drying the bag after a shower.  I have no idea why this annoys me, it doesn't hurt, it only takes about two minutes, but it just gets on my nerves, lol.

Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/7/2008 8:35 PM (GMT -7)   
I have not posted in a long time. The things that annoy me are going into a public restroom
to empty my bag. Going swimming and not being able to dry the bag right away and all the
extra crap I carry in my back pack in case of an accident. I get pissed when I go to an event
where they have security and they take my empty water bottle and I have to pay $3 or more
to buy a bottle so I can empty my bag.. Security in the airport. I had a funny thing happen there
because my bag was full of air and when they ran the wand around my body they touched the
the bag. I refused to pull up my shirt in public and got taken aside by the airport police. So when
I lifted up my shirt the guy said what is that? I said it is an ileostomy and he said it looks like a
penis. I said okay your right it is a penis. He said why do you have it in a bag. I said I couldn't
find a pair of underwear that had two holes in the right place. He just looked a me like I was
crazy and said go on. I just cracked up laughing. Can you imagine what that guy was thinking.
Anyway it helps to keep a sense of humor. Fruitcake

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 7/7/2008 9:34 PM (GMT -7)   
I'm annoyed that I don't have an excuse to get any reading done while on the loo. Two minutes and I've emptied and I'm out of there!
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/8/2008 7:35 AM (GMT -7)   
I love it Shaz!!!  It's true, I need little time in the bathroom now.
 
Output can sometimes have a funky smell...you know what you ate!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 7/8/2008 8:28 AM (GMT -7)   
Yes! Drying the darned thing is annoying. Yes! No quality on the pot time! Yewww. And that smell. But most of all I hate filters. Mine clog within a day and I'm poofy constantly from gas (plus I have a hernia).
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/8/2008 9:38 AM (GMT -7)   
shaz i have noticed that too, I used to cut my fingernails on the "loo" as you call it, when i had UC, i was in there all day anyway, may as well do something useful, lol. Now i have to cut them like a normal person!
Fruitcake-i love the airport story! i know it wasn't funny when it was happening to you, but it sure sounds funny written down!

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 7/8/2008 11:39 AM (GMT -7)   
Maybe, I'm just messy, but I have problem making a huge mess on the toilet when emptying the bag. Especially, first thing in the morning when I'm groggy anyway. I have to schedule more time for toilet cleaning than I ever did before. Oh yes, the big round belly bump is definitely annoying!
Jennie

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 7/8/2008 12:03 PM (GMT -7)   
oh yeah. the mess ... seems like I always forget about the underneath side of the front of the seat. I mean, I don't lift it up often enough, but I feel embarrassed when I know that guys used it when it was icky.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 7/8/2008 4:07 PM (GMT -7)   
OMG. I hate it when it's really really hot, and I feel all sweaty under the bag. I have cloth covers, but when it is 107 degrees (like today), that doesn't help.
 
LOL, one thing for newbies to think about as they read our complaints here is this: Just look at how minor they actually are. Tally up this list vs the ones you had with UC or Crohn's or whatever, and it is sure one sided!!!
 
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 7/8/2008 4:45 PM (GMT -7)   

Hilarious!

I thought I was the only one who missed my quality bathroom time... I definitely do not get as much reading done as I used to.

I get annoyed trying to clean the end of my pouch after emptying when I am in a hurry.  It took me a while to realize that less is more when it comes to toilet paper.... 3 squares  is just about right. One to squeeze excess waste from the end of the pouch, one to fold into a tiny rectangle to clean any left overs just inside the opening and one more to wipe the outside of the pouch before putting the clip back on.   I have been thinking of inventing something that you could fit in your pocket to do this for you - mess free.

I also get annoyed when changing my appliance and my stoma decides to be active.  I dont know how many times I have cleaned up sht off my bathroom counter and floor...


Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6+ months.
 
 
 


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 7/8/2008 4:46 PM (GMT -7)   
oh yeah.. one more thing.
I developed diversional colitis in my large intestines and will have a bout of Diarhea every few months - doesnt seem fair considering my guts are disconnected...
Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6+ months.
 
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/8/2008 4:54 PM (GMT -7)   
i have the perfect solution for the toilet mess problem! i have hte same thing happen to me sometimes. I was using Clorox wipes to wipe up the mess on the seat, if that happened, but that was getting expensive. So, i got those alchol prep pads, you get like 300 in a box for really cheap. And it takes about two of them for me usually to get it cleaned up. And since it's alchol it sterilizes it.

Angela-that is so funny that you said that about three squares! that is what i found is perfect too, and also thinner toilet paper works better, saves you alot of money too, lol. In the batrhoom i use, there is no toilet paper holder thingy, just no good place to put one, so the tp roll just sits on the back of the toilet, no biggie cause noone but me goes in there. However, i found that it was alot easier to have the sets of three squares all ready to go, so i just tear off a bunch of them and make a little stack.

Jo-what you said about the worries being little compared to UC is exactly what i was hoping this would show people!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 7/8/2008 4:59 PM (GMT -7)   
I just pretend poop and do the crossword on the pot anyway ....
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 7/8/2008 11:33 PM (GMT -7)   
The only thing that really annoys me is the rising cost of ostomy supplies. If gas goes up in price we could choose to drive a little less. But we can't use the same technique  when it comes to ostomy supplies. They've got us by the "short and curlies" and the companies that sell ostomy supplies know it! M9 drops were 9 dollars a bottle when I first started using them back in '95. Now they cost around 30 dollars a bottle! Why? Greed, that's why! Thanks to your suggestions I now use mouthwash as a deoderant for 2 bucks a bottle! Other than that, life after ostomy surgery has been pretty darn great for me!

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 7/9/2008 8:46 AM (GMT -7)   
****@short and curlies! now that made me laugh and so did the airport story! I have the toilet issue too, with it being under the front of the seat. Now that my brother's home i really have to watch it, because he constantly lifts the seat. I hate the gas, and i hate leaks at night, mine arent usually bad and i wake up b4 they mess up n e thing, but i hate changing the bag when i havent planned on it.

Like this morning for instance, i had a late night last night so i hit the alarm like four times this morning, when i finally did wake up (late for work) i noticed i had a leak, by the time i changed my bag i just opted not to go to work :o/ oh well

i also miss bikini's and short shirts, i was the stomach chic ( i loved showing my belly, i still havent removed my belly ring lol), and i hate staring in the mirror to see if something is showing and i hate feeling self concious around guys when they try to hug me or touch my stomach :o(
but such is life....
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 7/9/2008 4:48 PM (GMT -7)   
I miss reading the Sunday comics on the toilet. Now I don't read them anymore.

I hate it when my pouch fills up with air, especially after I've just drained it. I even have filters on the pouches. The other day I made homemade blueberry pancakes with whole wheat white flour (yes, that's what I meant) AND we had Morning Star Farms Veggie Sausages. You wouldn't believe the color, odor and how much my bag was about to burst in the middle of the night - caught it just in time. Too much fiber, I suppose.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/9/2008 7:00 PM (GMT -7)   
blue things make it look so funny, and smell so weird!
When i eat blue things the smell almost knocks me out! but at least i CAN eat blue things now,lol.

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 7/9/2008 7:32 PM (GMT -7)   
I get annoyed cleaning it. I am opposite from some because I get a big wad of toilet paper and twist it into a long cone shape and stick it in the bottom and twist it around. I usually have to do that twice. I think everytime I empty I always think "wow.....this is really me?????". I feel like I went from "normal" to no colon so quick......gosh, so fast!!
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/9/2008 7:55 PM (GMT -7)   
Thanks Summer for getting this started. Everyone got to share some funny stuff. All of our lives
have changed for the better dispite the bag. When I told the airport story I forgot to say that I am
a woman so having the guard asking me if that was a penis really crack me up. We were traveling
to europe and my doctor had written a letter to explain why I had the pouch and about my supplies.
England was fine but when we got to croatia they took one of bags to examine it and never gave it back.
I have often wondered what they did with it. I like to think it is hanging in the police office as an
example of some kind of contraband. I went swimming in the ocean this past week and I kept thinking
I would be attacked by sharks because they would smell the fish I had for lunch and sharks can smell
two miles away. I am still here so I guess they didn't like the kind of fish I ate. Plus I sprayed my bag
with bug spray. Does anyone else live in calif. and have to deal with this heat?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/9/2008 8:16 PM (GMT -7)   
with bug spray?
well i live in NC, it's been ok this week, but we have had 100+ since the middle of May, plus its very humid here. Which, i dont know from experince myself, but i have heard that humid heat is far worse than dry heat like out west. there was a man from, i think arizona, who told me that 110 out there felt cooler than 90 here with the humidity

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 7/10/2008 3:26 PM (GMT -7)   
Fruitcake, I'd love to know about the bug spray too.

Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 7/10/2008 7:36 PM (GMT -7)   
badbaggirl you are hilarious!
I am reading this while my boyfriend is watching tv next to me and laughing out loud. I tried to explain what was so funny, but he doesnt get it...
I am so glad I found this site!
Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6+ months.
 
 
 


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/11/2008 9:59 AM (GMT -7)   
Bug spray. I figured it would mask the smell of the fish and it was the only thing I had with
me. I watched a program on sharks a few weeks ago and they bait the sharks with fish oil.
Sharks can smell fish oil up to two miles away. I had fish before I went swimming and figured
my bag would smell like fish oil so I sprayed it with bug spray hoping it would mask the odor.
the heat in Ca. is dry heat but it still feels like 103. It makes you sweat and the sweat makes
your bag stick to your skin. I was in Memphis and it was hot and humid so I tried baby powder.
It helped but every time I walked I produced a cloud of white smoke. Maybe I used to much.
Hey Angela, I think you said you are going scuba diving. Get your doctor to give you some nystatin
powder to take with you. When my skin got sore from my trip that is what my doctor gave me. Now
I keep it on hand just in case.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/12/2008 5:45 PM (GMT -7)   
I've been thinking about this question for a couple of days and am having a hard time coming up with something that really annoys me, so I'll share some of my twisted humor with you.

I'm annoyed that I don't mop my floors as often as I used to. You see, I used to have a lot of accidents while sprinting to the bathroom, so I used to have to mop my floors all the time. Now, I never have accidents, so I've stopped having a reason to mop so much.

I've also gained weight since surgery, since I no longer sprint to the bathroom 20 times a day. So, I've had to join a Jazzercize class and jump around with a bunch of old ladies just to lose a couple of pounds. It's not pretty.

:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/12/2008 9:26 PM (GMT -7)   
i love the floor story, that very reason is why you are one of few people who think I am funny, lol.
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