I am hanging in there. I seem to do okay by using the phosphosoda and eating a low fiber diet. I still don't have the dates yet as to when I will have the tests done, all I know is they were looking at August.
I was shocked that I have still had problems with constipation. My small intestine motility was EXTENSIVELY tested for motility. Mayo Clinic has very advanced tests. One of the tests they did is only performed six places in the world. All my small bowel tests came back normal. I think what may have skewed the results was that I was using laxatives. I would get like two days notice of the test and stop using laxatives, but I am sure that two days was not enough to totally get the laxatives out of my system. I was using 45 Dulcolax (bisacodyl) every night just to have some sort of bowel movement. I should say movements, because it would just be a little here, a little there, never just one movement. I knew what I was doing was wrong, but nothing else worked. I had been hospitalized five times in a six month periods for severe constipation that I was unable to treat myself. I only took those large amounts of laxatives for about
6 months, so I know that was not the cause of my problems, my problems began WAY before then. I had actually never used a stimulant laxative until after my sigmoid resection by the advice of my surgeon. I just had to keep using more and more and more. I so feel your pain about
having to use large amounts of laxatives. If I were you, I would try to do the surgery as soon as possible so you can minimize damage. Senna is really hard on you, it was the one laxative my gastroenterologist told me to NEVER use because it can damage nerves in your colon. But there again, it has been used by people for so many years and many people swear it does no damage, so who knows. I could not tolerate it, it gave me terrible gas.
If I were you, I would also try to have a total colectomy. If it is not working right, even a small part of your colon remaining could make you miserable. Keep us posted on your progress