My daughter has been home from the hospital since late Wednesday evening. She was allowed to start on a low residue diet on Tuesday but really didn't have much of an appetite in the hospital (and even not much now). She is starting to get hungrier but seems afraid to eat. She's had a little food (1/4 of a grilled cheese sandwich, 2 oz. of applesauce, pudding, etc). She had some chicken today (small bites, chewed very carefully) but some pieces came out in her bag. Her stoma is very high in the small intestine so there isn't alot of time to digest.
Did any of you experience a feeling of being afraid to eat or unsure what to eat? Any suggestions on what to eat? She doesn't like peanut butter, pasta, applesauce or eggs. Bananas bother her sometimes. I am trying to get her to eat a baked potato.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare! 7/3/08-Step 1 j-pouch surgery