ok...so i dont have to use convexity ( yet lol hopefully never) but i do know the feeling of changintg the bag and how hard it can b right after surgery. I thought id previously posted on this topic about how vital a moms help is, but i dont see it here. But long story short, when i had my surgery, my mom had to help me change my bag and i cried alot too, it took us up to an hour sometimes... The frustration w/an active stoma, leaks, the weird feelings ur body goes thru, being grossed out...it was really hard.
But, if u guys can stick it out, i really dont think u'll need to pay someone to keep changing it. She needs to gain the experience, for however long she'll have it. They'll be those moments (hopefully very few) like u mentioned where its the middle of the night when a nurse won't b able to make it. and the more u do it the easier it gets. Trust me, i thought the day would never come, im now down to about 10-15mins...the smell goes away...it will get better, but eventually she'll get like me. I had a leak and didnt want to have to wait for my mother to change it, so i got pissed and did it myself....sometimes sheer frustration and anger will push u into doing it for urself lol
just let her know it'll get better...
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Worst year ever!
"For God has not given us the spirit of fear....."
Where does mine come from?!
Temp Ileostomy performed 1/29/08
Healingwell.com has been my Godsend...Thank you