Hey everybody, I just wanted to introduce myself. I in the past have posted on the UC forum and everybody was so helpfull. The support was great especially last summer when I was hospitalized twice with pan colitis. Anyways, I'm due to have surgery the 1st of August. I was in remission for awhile after my "new" doctor (my husband was relocated last winter) doubled the dose and frequency of my remicade. But it has stopped being affective, so before I get totally sick again I've decided to have my colon removed. It's a 2 step surgery. I'm a little freaked out about dealing, changing and cleaning the bag and stoma area and I'm very nervous about the surgery. I'm a mom of a 6 yr old little girl and a 2 1/2 little boy. My mind wanders to "what ifs" and I think of the worst when it comes to the surgery. What if I dont wake up, what if I have a stroke during it, etc.
I also wonder what recovery will really be like. In my head I think it will be life as usual other than my new appliance and not lift over 10 lbs. Am I going to be able to take care of my kids. I'm supposed to be having the surgery laproscopically, but the surgeon says it's possible once he gets in there that it turns into an open incision.
Anyways thanks for listening. I've learned a lot by all of you already. thank you
32 yrs old, Mama to my darling daughter (6yrs) and my little boy (2 1/2yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Double dose of Remicade every 4 wks HAS STOPPED BEING EFFECTIVE
Prednisone 40mg, Zoloft 100mg, Phenergen
Having a total colectomy Aug 1st 2008