My daughter, Bratcat, had her staples removed on Friday. That has made a big difference. Even better news is that all the tests from the surgery came out great. No dysplasia and not Crohns. And on Saturday, she removed her wafer and showered au natural! And we were able to put a new appliance on. And it didn't take an hour! So far, so good. Shhhh (don't want to jinx it).
Bratcat is having more good hours during the day than tough ones. Less tears. More smiles.
BTW, Bratcat does have her own screen name here. She rarely posts but does read the forums daily. I know sometime in the future she will be stopping in and saying hi.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare! 7/3/08-Step 1 j-pouch surgery