Proctocolectomy question

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Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 7/24/2008 3:08 PM (GMT -7)   
I have to say that I have been feeling FANTASTIC for the last 2.5 months.  I had my surgery the beginning of February 2008 and after complications, was doing great...
 
Last Friday I had this funky feeling while I was taking my daily walk, kind of like a pinch/itch, didn't really think anything of it but when I got home, I had some drainage.  I wasn't concerned since I didn't have a fever or pain...fast forward four days and the drainage stopped, so the pain and fever began.  Called my doc and have an appointment on Monday since tomorrow is his surgery day...but will have to go to emergency if it gets worse but as of right now I can get by with tylenol and have the "big guns" in reserve.
 
I know some of you have had a long road to recovery in the rectal area...have any of you had fistulas/rectum healed, only to have problems later down the road?  Any suggestions?
 
Thanks!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/24/2008 11:38 PM (GMT -7)   
It sounds like you might have an infection. It took 9 months for my rectum wound to completely heal up, and I had to pack it twice a day with saline filled gauze. It did get infected about 6 weeks into my recovery, so I had to have it surgically cleaned out. I've been healed up for a year now, and have not had any recurrence of fistulas or pain.

It's a good thing you're going to see the doctor. Keep us posted on what you find out.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 7/28/2008 3:40 PM (GMT -7)   
Cecilia-Thanks, yep, thats what it is. I have to go have an outpatient "procedure" to clean it out then a few weeks (I hope) of packing! It is just such a bummer to feel so great for so long to get hit like this during the summer:( it could be worse so I'll thank my lucky stars, smile and move on!

mommyphotographer
Regular Member


Date Joined May 2008
Total Posts : 159
   Posted 7/28/2008 6:14 PM (GMT -7)   
wow that is so werid i was coming on here tonight to post about me and i still may but need to reply to this post. i am 5 weeks post op and was doing great. but my incision on my belly from open subtotal colectomy is not opening up slightly but getting ***** also. there is only two spots but they are sore and red and itchy. and i was going to post what do you all think about this. should i call the dr tomororw and what will they do for me. it isnt like really bad yet but it sure it starting to act up and seems to be on the road to being a problem. have any of you had this happen to you and how bad did it get and did it happen like 5 weeks after surgery

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 7/29/2008 4:00 AM (GMT -7)   
Ohio,
I'm glad you were able to get in to see your doctor so quickly. The cleaning out procedure was no big deal for me. It was done in the hospital, since I was put under for it. I woke up and could go home right away. I felt soooo much better after that! I was able to pack the butt wound myself by bending over in front of a long mirror, so I could see what I was doing. Are they going to put you under for yours? I think it would be really painful to be awake for it. When are you having it done? Keep us posted!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/29/2008 5:01 PM (GMT -7)   
Definately going to the OR!! Outpatient on 08/08/08 and my doc's set up a home nurse for a week or so to repack everyday...he seems to think its in a hard place for me to do it!! Ha Ha if he only new how creative we can be with mirrors!!! I still remember the seton placing surgeries-UGH- always went to the OR for those, so I am guessing this will be easier. He said it is a "quick" surgery!

I am so glad to hear you were better at 9 months post op. I really hoped I wasn't going to have anymore issues since I was so far post op...they REALLY mean 1 year recovery! The biggest bummer is that I had planned a family trip to Charlotte, NC for a couple days and this cancels it:(

I'll keep ya posted!
Anne

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/29/2008 8:32 PM (GMT -7)   
oh you were gonna come near me!
I didnt' have to repack mine i dont' think, my husband is a nurse, so he may have done it for me and i just don't remember, lol

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/30/2008 9:35 PM (GMT -7)   
Anne ~ that's my middle name! 8/8/08 is an easy date to remember, and it's the beginning of the Summer Olympics, so you'll have a lot of good stuff to watch on TV. Sorry to hear you had to cancel your vacation. When I had my "cleaning out" surgery, I had to miss my dad's funeral in Philadelphia. The infection made it too painful for me to sit that long on an airplane. Luckily, we had a memorial service for him at my church several weeks earlier, and I was able to attend that.

summer ~ I love NC! We used to ski Sugar and Beech, when I was younger. My dad loved to ski, so he would take us up there from Florida on vacation. You've got the best of both worlds - the ocean and the mountains! :-)

Cecilia

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/12/2008 12:20 PM (GMT -7)   
Okay, here's my update~the procedure was quick, but my abscess was large! my outpatient turned into four days and a hookup to a wound vac...The olympics were a lifesaver!

Has anyone had experience with the wound vac?

So far, so good. it doesn't hurt or bother me, I just have to stay attached to the pump 24/7. They say that this is supposed to cut the healing time in half. I'll have a wound care nurse come to the house mon/wed/fri to change the dressing and evaluate the wound. My nurse in the hospital said that it is a good/clean opening and should heal quickly...keep your fingers crossed!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/13/2008 7:27 PM (GMT -7)   
Good Luck! My brother in law had great success with a wound vac on his ankle when he shattered it and was having a hard time healing after a plate and many, many screws were inserted.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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