Update: Carlow

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Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 7/26/2008 8:43 PM (GMT -7)   
Hey all,

I know I'm not really all that much of a regular member anymore. But as many before have claimed as an excuse, I've been living life ever since I was released from my first surgery! I recently had my ileostomy reversal performed and it is now 1 week post-op. To my surprise, I believe I have fallen into the minority of people who are almost completely capable of carrying out their daily activities soon after the reversal. After having so many problems with the first stage my family and I were expecting that I would be out for at least a month. However here it is a week later and I'm considering going back to work on monday. (I am knocking on wood as I type). I haven't seen many posts from the folks I used to converse with aside from the moderators (hats off to you guys for being there for all of us) so I'm assuming things are going well for them, I hope. As when I updated after my first surgery, if anyone has any specific questions about my experience I will be checking here every now and then. For the most part though I'm ready to move on, handle the immediate post-op effects of the reversal and get settled into the life I had planned before my UC took over. So lets see if Fate allows me to have a little handle in what happens eh?

Cheers to all,
Carlow

Oh, and Butt Burn is the worst, believe it, lol.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)
(Scheduled for Stage 2 of IPAA in mid-July!)

Meds:
Coumadin (6mg daily, 9mg four days out of the week)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/26/2008 9:19 PM (GMT -7)   
glad to hear things are going so well for you!

just out of curiousity, i hear everyone talk about "buttburn" is that the same thing as like when you have to wipe alot and it gets sore, or is it something diff? i have heard people say they got butt burn after eating certain thngs. Just a random thing, dont' answer if that's too nosy!

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 7/26/2008 9:44 PM (GMT -7)   
Hi!

I'm glad to hear things are going so well for you! I have my reversal on 8/8/08. I'm nervous and excited!!! Any advice? Did you have to do the xray test before reversal? The one where they fill your pouch with stuff, and take x rays? if so, how was it?

I really am glad to read your post, people over on jpoch.org have me more scared!
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/27/2008 8:41 AM (GMT -7)   
Congrats Carlow! I know you had some terrible experiences, but they are in the past now! Enjoy your first day back a work and LIVE LIFE!

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 7/27/2008 9:07 AM (GMT -7)   
Carlow:

I am so glad for you that your reversal went so well! I had my reversal on May 28th. It didn't go quite so smoothly for me but I am feeling better now. Are you on a special diet?

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 7/27/2008 8:45 PM (GMT -7)   
Carlow!

I love to hear when someone's has had their reversal and things go will. You'll have to keep us abreast. I'm hoping to have my reversal sometime in October/November. I received my temporary loop ileostomy July 23, 2007 and was supposed to have it only three months. Hopefully, just one more surgery before my reversal. That's what I'm praying for. All my problems have stemmed from having a baby naturally 22 years ago.

sfgiantsjo, please let us know how your reversal works out for you.

I'll be praying for all of you!

Mary

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 7/27/2008 8:54 PM (GMT -7)   
Alright, so...

summerstorm: From what I've read of others, BB is when you eat certain foods that cause your stool to liquify and the acid from your stomach and bile irritate and inflame the skin around and just inside of the anus. In my experience, it does occur when I eat certain foods, (often with a higher acidity than other foods, such as vinegar) however so far all my BB encounters have been with solid stool. Or as close as I can get to solid stool. So it seems to me that its just a matter of how acidic your diet is. It can be extremely painful and you usually have to use some sort of topical cream to reduce the intensity (notice how I didn't say eliminate) the burning sensation. I hope this goes away over time, opinions seem to vary on that.

sfgiantsjo: Congratulations! I hope everything goes smoothly! I would say the best thing to bring is some extra soft tp like Downy or Charmin Blue with you to the hospital...also, some alcohol free toilet disposable wipes...these will be invaluable in the weeks to come. The hospital may provide some cream to help prevent BB, but in case they don't I've heard calmoseptine works wonders (you ask for it at the pharmacy counter). I also brought along some gas-x and immodium but the nurse told me to keep it out of sight as the hospital likes to keep everyone on their own stuff. But, these are things to keep around the house when you return. As for the surgery itself if the first surgery was rough, as it was for me, then this one should seem much easier. I was out in 3 and half days, including the day of surgery. The x-ray before the surgery was a little weird and slightly painful (I had cramp-like feelings when the contrast fluid made its way through my unused section of small intestine, and it was weird to have lots of fluid gushing out into my bag). They put me on a table that tilted, and I had to turn on opposite sides so that they could make sure there were no leaks in the jpouch.

Indabag: As of yet I am only restricting myself from things that contain vinegar (learned this the hard way), as it gives me the aforementioned BB. I have noticed that, as with a colon, things like bread and pasta give me more solid results as compared to soups, meats, etc. However I am only a week and a half out from the reversal so maybe that will change. I do take gas-x and immodium at night to keep me from making excessive trips.

OHIO76, and to everyone else, thanks for the congratulations! I look forward to rejoining the workforce and feeling like I have a purpose yet again.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)
(Scheduled for Stage 2 of IPAA in mid-July: Complete!)

Meds:
Coumadin (daily)


lacey55
Regular Member


Date Joined Jun 2008
Total Posts : 29
   Posted 7/31/2008 4:08 PM (GMT -7)   
Am so thrilled to hear of a quick recovery! There is hope!
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