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Regular Member

Date Joined Mar 2005
Total Posts : 79
   Posted 7/30/2008 10:00 AM (GMT -6)   
Ok, this may seem like a silly question, but out of curiousity; can you get pregnant with an ostomy?
   What happens to it as your belly swells with the pregnancy?
I am not planning to get pregnant at the moment but always wondered...

Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6 12+ months.

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 7/30/2008 11:17 AM (GMT -6)   
As you swell your stoma changes size and shape. It's a pain b/c it's like you're starting all over trying to find a good fit. Also, when your belly is big you may need to use a mirror to see your stoma when you change. I'm not planning on having another but if I did I would get my stoma 'redone' after the fact. Last time, after I had my daughter, I just couldn't get a long wear time with my bag 'cause my stoma was so weird--I hated it. Other than that it's fine. It didn't cause problems with ultrasounds or nst's or anything that I encountered. Not a silly question at all!!

Regular Member

Date Joined Jan 2006
Total Posts : 242
   Posted 8/5/2008 12:04 PM (GMT -6)   
hey angela, i was pregnant when i had my ileo surgery and it was a pain, but worked out fine. i did have some issues finding a good seal but i had never had a bag before so i think i would have had those anyway. the eakin seals were a lifesaver for me. my biggest issue was i had a gaping hole in my pregnant belly right next to my bag so i had such little real estate to get a good seal. the surgeon left me open because of infection risk... it was sort of a nightmare in that regard. i had to have a ton of ultrasounds and they just worked around my pouch the best they could and were totally understanding. i ended up having a c-section 5 weeks early and they took off the pouch and cut through the same vertical scar that they had made for my colon removal a couple months prior. c-section was a piece of cake after the first surgery, but i was much healthier by then too. we're going to try for another baby starting in december so it's definitely worth going through again. after that sometime i'm hoping to get a reversal, but my surgeon said it's better to do it after we're done having kids because there is risk with the j-pouch getting botched with pregnancy and also a risk of infertility afterwards. hope this was helpful!
29 yr. old female
diagnosed with pancolitis uc 7/05
emergency ileostomy 11/07

vitamins, TPN
pregnant~ due in march

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