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Regular Member

Date Joined Jun 2008
Total Posts : 67
   Posted 7/31/2008 4:36 PM (GMT -7)   
4 more days till i see my dr. I am getting worse I can barely eat at all only like 700 cals n a day now, pain hurts real bad i cry alot i feel sick to my tummy which honeslty can't get much bigger swelling in face and hands legs bad...i am sick i am hopeful scared for surgery but anxious for it too hopefully will undergo surgery within the next few wks i just wanna feel better. i can't take this what if they say i have to wait more. i hv no bms on my own at all, i hv no energy weak and fatigued, I have been like this 3 months i continue to take miralax-min. oil and metamucil. It does NOTHING, how much longer im running out of room in my belly fast. Then what?

Regular Member

Date Joined Aug 2007
Total Posts : 212
   Posted 7/31/2008 6:33 PM (GMT -7)   
Hopestar, what is going on with you? Do you have a diagnosis? Sorry, I don't think I know your story/background.

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 7/31/2008 6:37 PM (GMT -7)   
It sounds to me that your more scared of the unknown right now. Most of us went through that. I'm sure a lot of people will chime in after me. But, ostomy surgery absolutely imrpoved my quality of life. I had my surgery 19 years ago when I was only 28. I developed Crohn's when I was 17 and it was fairly under control for a while. At around the age of 26 it flared up and made my life miserable. After the surgery I was physically stronger than I had been in a really long time.
I hope your doctor will be a little more proactive with you. Playing the waiting game due to an overly conservative(maybe even inept) doctor is cruel and unusual punishment to me. No pun intended, but it sounds to me that it's time for your doctor to s**t or get off the pot! Sorry for being so blunt. But it's become my experience over the years that there are many inept doctors out there that don't belong in the medical profession.

Regular Member

Date Joined Jun 2008
Total Posts : 67
   Posted 8/1/2008 1:08 PM (GMT -7)   
my condition is colonic inertia, im gnna be hving a colectomy ileorectal anastamosis. 3 days till i go to dr.

Forum Moderator

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/1/2008 1:55 PM (GMT -7)   
Have you tried fasting in order to reduce the pain? As long as you aren't terribly underweight fasting might make you feel better until you can have surgery.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Jun 2008
Total Posts : 67
   Posted 8/1/2008 4:11 PM (GMT -7)   
I cannot fast iam a recovering anorexic, if i give in once ill end up back when i was waaaaaaaaaaaaaaayyyyyyyyyy underweight thnku 4 the suggestion but i cannot give into that ****** ed again. ill just suck it up and get thru it.
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