How noisy are ostomies?

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KAP
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Date Joined Jun 2006
Total Posts : 78
   Posted 8/4/2008 6:10 PM (GMT -7)   
This is something I've been wondering about.... I've read that when you pass gass, you have no control over it and it just comes out.  Do you have no warning?  And is there anything you can do to muffle it?  Does it lessen over time?  This is something that makes me nervous (among other things!)when I think about having an ostomy and just thought I'd ask. Thanks in advance! :-)

justjenjen
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Date Joined Nov 2003
Total Posts : 518
   Posted 8/4/2008 6:49 PM (GMT -7)   
Well, when I had a colostomy it seemed kinda noisy. Sometimes, you can feel it coming and put your hand over the stoma to muffle the sound but not always. When it made noise I told people it was my stomach--since they couldn't smell anything they never argued the point. I now have an ileostomy and it is very silent.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/4/2008 7:06 PM (GMT -7)   
when you first get it, like the first two weeks or so, when you aren't really eating alot, it can be rather noisy. After that though, it's not very noisy at all. There are also things you can do to help keep it from being noisy. Like making sure you dont' let yourself get hungry, takign some gas-x before you go out, layering your clothes. Sometimes if i am going somewhere that is going to be really quiet, or if for some reason i get paranoid about it being noisy (i'm a freak sometimes, lol) i just put a few pieces of cut up washcloth on top of it. Muffles any noise there might be.
But really, it's not a worry at all. If people were to hear it they would either think it was your tummy, or that you passed gas.

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 8/4/2008 8:45 PM (GMT -7)   
An empty stomach makes my ileostomy sputter and spurt. Skipping meals is not a good idea, and you can tell I have not been skipping any lately! Could stand to lose a few pounds.

Firthy
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Date Joined Mar 2007
Total Posts : 33
   Posted 8/6/2008 11:54 AM (GMT -7)   
I get the same problem sometimes =).. but its usually if i eat something gassy like baked beans lol.. and usually if i chew chewing gum for a while.. Or drinking a really fizzy drink or beer

Ull work out what makes you gassy and what helps.. with trial and error,

When it happens to me and people hear i just look at them and say "Ahh im starving =D"

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 8/6/2008 8:03 PM (GMT -7)   
Usually, it's very quiet, unless you eat something that causes gas (like I did tonight --Chili --oops!). If it ever makes a noise, you can put your hand or forearm over it to muffle the sound. If someone is around when it happens, I'll say, "Oh, my stomach's growling," and then I'll put my hand over it. It works every time! :-)
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/6/2008 9:30 PM (GMT -7)   
something else you can do, if you are just sitting around with friends or something, is sit with a pillow over your stomach. I have noticed recently that alot of people do that.  And if noone is doing it, i kind of make it look like i am using it to lay on. 

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 8/6/2008 9:38 PM (GMT -7)   
The "My stomach is growling, I'm really hungry thing really works, I use it all the time. If you don't act weird, no one will think twice. My ileo is usually quiet, but it really gets bubbly at night if I lay on my left side (my ileo is on the left). My husband says I keep him up with all my "farting". LOL. I tell him it's payback for all of his farting when we were younger. And then I tell him he got off easy, cause mine aren't stinky!
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 8/8/2008 4:50 AM (GMT -7)   

hi KAP...

I had to respond because one thing none of the doctors even told me about before my surgery was Gas!...For the first month and a half or so after surgery, I had gas ALL the Time! :(.  And it was definitely loud--the "my stomach is growling" excuse would definitely not work.  It literally sounded like a whoopee cushion or something, almost 10 times per day... I was so alarmed because I thought how can I go throught the rest of my life making these sounds??  But the people here told me it would eventuially go away and it has almost completely!

Now, I can't even remember the last time I had a gassy sound (I am about 3 months postop)--it may happen once every 2 weeks for me, and now the sound is so quiet that if I am in a room with people talking or a radio on, no one would ever hear it, really.  I can always feel it coming, which is good bc you can put you hand over the stoma and muffle it as other said.  I don't even do that since the sound is so quiet now.  The only thing that I know gives me gas is ice cream, and thats because I am lactose intolerant!

Good luck.  If you have gas at the beginning, it will surely decrease greatly as you recoup. :)

E

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 8/8/2008 3:41 PM (GMT -7)   
Thanks so much to all of you for your responses.  I feel very comforted reading these. This board is a lifesaver and as I've said so many times, I don't know what I'd do without the support that's so readily available here!!!  Thank God for the internet, that's for sure!! 
 
I think I read somewhere on this board that wearing something like bodyshapers like Spanx can also muffle it - I was surprised to read that we can wear tight shapers like that - is that really okay?  And how about pantyhose?

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 8/9/2008 7:43 AM (GMT -7)   
Kim,
I agree, the people on this board are so encouranging, and I'm so thankful for everyone here. To answer your question, you can wear tight jeans, body shapers, pantyhose, and even sleep on your stomach with an ostomy. These little stomas can take a beating and keep on pooping!! tongue
Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 8/9/2008 11:18 AM (GMT -7)   
LOL, you're funny, Cecilia!!!!!
GREAT to know I can still wear bodyshapers. YIPPEEEE!!!! I was so scared I couldn't.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/9/2008 4:49 PM (GMT -7)   
you can wear those things, easily, i just empty a little more often when i wear them

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 8/17/2008 9:26 PM (GMT -7)   
I'm just so amazed you can still wear those -- I thought they would be way too tight against the bag. That's really good to know. Thanks again for your replies. :-)

simmadown
Regular Member


Date Joined Jul 2008
Total Posts : 26
   Posted 8/18/2008 5:07 AM (GMT -7)   
KAP, my stoma mostly goes 'pssshhhhh' instead of making a pooty sound. Very very rarely it makes a clattering noise but as others have said, when I hear it, I put my arm across my stomach and it stops. I wear spandex-y underpants when I'm going out and tuck the end of the bag to the side under my panties. When I'm Home Alone I usually take off my underpants so that nothing is constricted, especially if I'm having frequent output. I live alone and work from home so not having on underpants under my jeans doesn't bother me. But you can definitely wear tight clothes. As mentioned, you will empty more often just to keep a smoother silhouette.

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 8/21/2008 11:33 PM (GMT -7)   
Simmadown, I'm sure it probably is best to not wear underpants when you have an ostomy. I can see how things might flow into the bag easier. I just have no concept of how it feels to have a bag attached to the body all the time. Does it just get to become like part of your body? I'm probably going to need one and I'll be very thankful to get all this waste out of my body for the first time in my life!! I'll do whatever I need to do. I know all of us on this board have been there.! I'm glad you have a good system going. And it's good to know you can quiet the bag if needed. I had nightmares of it just farting really loud without any ability to quiet it, LOL!! :-)

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/22/2008 9:33 AM (GMT -7)   
yeah you get used to it being there, in fact a good bit of the time, i forget it is there. however, i find it's easier when it is tucked close to me, cause when it's loose it swings around, and i cant stand that! i can't imagine going without it under my undies! when you first get it, when it starts gettign full, it will kind of hurt your tummy cause of the way it will pull at it. After your tummy heals though, you probaboy won't even notice it. Which can be bad at times, yesterday i think, i was busy with my friends and didnt' think about my bag at all and when i finally did think to check it it was so full, lol. i am suprised it didnt' pop off and go flying across the room! LOL!!! that would have been soemthing to explain, especially since none of them know, lol.
youc an ask the ET nurse for samples, or you can call the companies and then just go ahead and hook it to you and fill it with applesauce or something then you can get used to it.
But honestly, after a while you will just forget about it.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/22/2008 9:36 AM (GMT -7)   
let me add
there are some times when i am a little more nervous about it making noise than others, i get kind of worried about it at work, i am a waitress, and that is not something people would want to hear, lol.
But as a general rule, just the noise from a group talking would cover it up.
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