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New Member

Date Joined Jul 2008
Total Posts : 19
   Posted 8/15/2008 5:27 PM (GMT -6)   
posted the anyinfo post tks for replies,Surgeon admitted Her thursday evening,just came home from Hospital after being up for 24 hours,so i didnot reply to u guys right away.The Surgeon believes she has a kink in the tube just inside the stoma,we have had a rubber catheter which emptied into bag but that wasnot even working,He enlarged things with his fingers hoping this would keep things open,we are also instuctred to keep cath in,wife is with her now,got output when he put finger in there, i guess he is trying to hold off on another surgery, he says to early for drop down,pouch xray is next week initial surgery was 7/8/08, talked to wife , no output yet,feeding her liquids hopefully,getting rehydated will get things going,Iwill reply to everyone ,but got to get some sleep,I am truckdriver with safe record for alot of years and refuse to drive without sleep.She is hanging in there knowing that things will get better.We are 60 miles from Hospital tough to keep running to ER, so we are hoping things start to work.Decided to go to surgeon in Phil,pa teaching hospital hoping to give daughter best shot,no regrets will keep on pushing forward

Regular Member

Date Joined Mar 2005
Total Posts : 79
   Posted 8/15/2008 6:18 PM (GMT -6)   
Good luck!
Please keep us posted!!
Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6 12+ months.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/15/2008 9:48 PM (GMT -6)   


Good thing to get her in a bigger hospital where they have more experience.  When the time comes you may want her to have her 2nd surgery there.  Thanks for letting us know how she is, I was worried when I didn't hear back from you.



dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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