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Posted 8/19/2008 8:38 PM (GMT -7)
Hi I am new to the ileostomy and need to order supplies. The hospital gave me a 2 piece convatec but I was told there are some that have a self closure instead of the clips any help
Posted 8/20/2008 2:32 PM (GMT -7)
It really is a matter of what works for your body. Some of us use a 2 piece system, some a 1 piece, others need convexity, clips, no clips, etc. What you really should do is get various samples and try them out. Also, if you are a really new ostomate your stoma /belly are probably still going to shrink a wee bit. It is always hard at first to find the bag that works for you and that you are comfy with--good luck.
Posted 8/20/2008 7:41 PM (GMT -7)
I have never used the clip but I think they would be a bigger pain....me personally. I got all kinds of samples from different brands (hollister, coloplst etc...I called them and asked for samples) and I ended up with new image 2 piece hollister. I use the ring for extra security. I like the 2 piece so I can open it to let out gas/air. I would agree...it all depends on you but that is how it worked for me.
Pancolitis - July 2006

Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months

Medications:  Predisone - 5mg (and tapering to zero)

Supplements:  multi-vit, calcium

Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

Posted 8/21/2008 2:57 AM (GMT -7)
I highly recommend the Coloplast Assura Extended Wear wafer (item #2833) and bags with velcro closures (item #13986). I get 7 days wear from the wafer and snap on a fresh bag every 3-4 days.
Posted 8/21/2008 7:19 AM (GMT -7)
What brands are there other than Coloplast and Hollister?
Female, Age 19, Dx w/ UC August 2007

9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day

Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day

*Step 1--09/08

Posted 8/21/2008 8:15 AM (GMT -7)
Go to the manufacturers websites and order as many free samples as you can from them.

The main ones are:

http://www.coloplast.com

http://www.convatec.com

http://www.hollister.com

http://www.dansac.com

What works well for one person may not work for you. Unfortunately, the only way to find the best appliance for you is to experiment with samples.

Good luck!

I have had an ileostomy for 32 years now due to UC.

Moderator of the Ostomy Forum

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

Posted 8/21/2008 5:55 PM (GMT -7)
Cecilia - yousaid you snap on a new bag every 3-4 days instead of changing everything...I literally never thought of that (don't know why!!)...I always disliked when I would have to change everything b/c my bag would get old/used....what a dummy I am....! I am so busy now that I am healthy, I am just in a routine about changing my appliance...

Thanks for mentioning this :)
Posted 8/21/2008 9:19 PM (GMT -7)

justjenjen said...
It really is a matter of what works for your body. Some of us use a 2 piece system, some a 1 piece, others need convexity, clips, no clips, etc. What you really should do is get various samples and try them out. Also, if you are a really new ostomate your stoma /belly are probably still going to shrink a wee bit. It is always hard at first to find the bag that works for you and that you are comfy with--good luck.

I couldn't agree more!

19 years ago the hospital "gave" me a few boxes of the Convatec 2 piece system. I tried them for a while, then experimented with a variety of others. 'Funny thing is I went back to the Convatec 2 piece system. Again, it's a matter of taste and lifestyle. But, to me, I found the Convatec pouches to be the least bulky(I've been using them steadily now for most of 19 years, so there might be others that are just as good). Plus I have NEVER had a pouch burst.I don't mind the clip, because theirs is the smallest clip I've used. I found the clip to be best for those that play a lot of sports and lead a generally active lifestyle. When I tried the type with Velcro(I can't remember the brand)the end would weap on those days when I was particularly active. Plus I found them to be messy when I had to empty. I'll probably never switch to anything else. It's funny how "attached" we get to our appliances..... no pun intended!!!

Posted 8/22/2008 4:25 PM (GMT -7)
Erin, I'm glad I could help! :-) How's school going?
Posted 8/31/2008 8:55 AM (GMT -7)
Cecilia,

Thanks for asking! School has been great! I have been so busy this last month and a half--we just moved in to our first home together, got married 2 weeks ago (we eloped in Niagara Falls--just the two of us--it was such a wonderful time!) AND I started back to school the day after we got back...!

I also became the department head for science at our school...something that I NEVER would have accepted before my ostomy surgery bc I knew I would not be able to take on all the extra work if I was not feeling well---but I am now!! I am also so excited to be able to take this on so early in my career!!

Hope you have been doing well and had a great summer! Illeostomies are seriously SO much better than having Crohn's!!!! :-) :-) :-)

Erin
Posted 9/3/2008 5:29 PM (GMT -7)

Wow, Erin, congratulations on getting married and on your promotion!! yeah woo hoo!! yeah I'm so glad you're doing well and can't agree more ~ having an ileostomy is way better than having Crohn's!!

:-)  Cecilia

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Posted 5/24/2013 4:37 AM (GMT -7)
Thanks Shaz032, for the we page contacts for the illiostomy bags samples etc, I have contacted all 4,and samples on the way.
Apologies I should introduce myself, Fudgie here, have suffered & coped with Ulcerative Colitis for the past 10 years, asacolon, oral steroids, Vi steroids and diet, worked till now. Was given the option for imuno suppressants or surgery two weeks ago, had surgery removed all large bowel 6 days ago, so early days yet. Feel relief already as I was going 30 times a day with cramps before surgery. The hospital let me home early with local nurse assist. Great to be back at home with my wife and three great kids, 2 weeks away from them was the toughest. So far bag is great, and getting the hang of it, finding all the benefits of open-empty and go! Again thanks for the guidance, great forum, where were we all before the Internet??? If you have any other pointers, tips, experiences for an illiostomy bag with "L" plate let me know.
Talk soon Fudgie-Lite (1.5 stone lighter!)
Posted 5/30/2013 12:35 AM (GMT -7)
Hi, Fudgie here again, I'm 2 weeks home now, I got a chest infection and have been coughing a lot. I went to my stoma nurse and she gave me support pants and told me to to support my stoma when coughing to prevent a hernia. That night at 4am I had a 10-15ml smelly rotten watery discharge from my rectum, which is disconnected from the rest of my bowel, has this happened anyone else? 3-4 days previous I have had the urge to push from the back passage.... Any info would be helpfull, I'm going to ring the doc today when open at 9. Thanks Fudgie.
Posted 5/30/2013 4:11 AM (GMT -7)
Hi Fudgie, this thread originated 5 years ago. It might be an idea to open a new thread for yourself so that people can comment on your situation :)
Ileostomy for 35 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums
_______________________________________________

I'm not a complete idiot - some parts of me are missing!
Posted 5/30/2013 6:12 AM (GMT -7)
Definitely trial and error for most after leaving the hospital with the one they outfit you with if that one doesn't seem to be "the" one for you. It took 4 tries for my husband to find the one he liked the best and what his skin liked the best too. All in all maybe 4 months and he has been using his preferred one now for over 2 years with great dependency and reliability.

This forum will be a big help for any ? you have along the way. Hopefully you have access to a WOCN who will also be able to assist you should you need it.

Erin that is awesome....very happy to hear things are going so well for you. For those who have the surgery for whatever reason and now enjoy a much better quality of life can get back to doing the things they want. I know it isn't that way for many others....I hope whatever difficulties people are having will be resolved soon for them. Having a forum like this with so many people with so much info to share is so beneficial.

It helped us a lot in the beginning just like the UC forum did for about 5 years while my husband suffered and tried just about everything and got very useful help along the way here at Healing Well.
Wife of 65 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free
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