questions for all you helpful folk who have have total colectomy with ileorectal anastomosis:
1. Does your life revolve around the loo? e.g. Do you have to be vigilent about when your next bowel movement will be because you could be taken short?
2. Now you have no large bowel, what are the sensations you feel when you know a bm is coming on? e.g. is it like 'i have to go NOW' or can you hold on for a while?
3. Are you glad you had the operation compared with how you were before? Was it a success for you?
At the moment my life does revolve around loos as i am on 25-28 senna per day, and this helps me to go twice daily somewhat though not properly. I have to make sure i am around a loo late afternoon if i take them (16 senna) in the morning, but there is no set pattern, and i could sooner or much much later, though i rarely experience like i have gone properly. it also takes 1/2 hour on the loo too.
i have to get to the loo pretty fast even if there isnt much there! anyone else experienced this even with colonic inertia???? I wonder if my life will always revolve around toilets. i want to be normal again . In the last few months i have started getting rectal pain/spasms/mucus and the feeling i need to strain. though stools are not hard?
thanks so much if you can answer my questions, as it will help me greatly. i am seeing my consultant mid sept to discuss having this op. I am getting worse. x
1997: Diagnosed IBS
2003: Pelvic floor repair surgery
2006: STARR surgery for mucosal prolapse/Obstructive Defaecation Syndrome. Also diagnosed with slow transit
2007: No difference. Had MRI scan showing a partial volvulus
2007: Therefore surgeon recommended a sigmoid resection which resulted in immediate colonic inertia
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once). In discomfort/pain most days.
Scared to have TC as told I could become incontinent - but looking to have surgery before end of year hopefully