My skin problem started just like that. The little holes eventually
opened up into a sore/ulcer about
an inch and a half in diameter. It stopped hurting a lot once it
opened up, but it was impossible to keep a bag on. I changed almost daily. NOTHING fixed it. My docs and nurses, including my GI, my stoma nurse and a dermatologist, all swore up and down that it was NOT pyoderma. They took biopsies from the tissue, and even tried sewing the darn thing shut. Sad to say, I lived with it for 7 months until my 2nd surgery. about
a week before that surgery, the sore strtedd to hurt again, and I mean something awful!! It began tunneling under my skin, and it went about
three inches across my belly. Since I was going in for my step two of three, my surgeon put me on antibiotics, and said he'd check it out during the surgery. I woke up with my stoma moved to my left side!!! They still don't know what it was, but said it was horrible and just eating away under the skin, so they moved my stoma. I had my tempileo on my left side for two months, and never had a problem - go figure. I still think it may have been pyoderma. But either way, it was a pain! I hope whatever your is, it clears up. To keep bags on for longer than teh five hours it took for the sore to ooze blood and gook onto my wafer, I began using sure seals OVER my wafer. They are like huge pieces of tegaderm, shaped like a tire. So it fit around the hole of the wafer, and then was bigger than the wafer itself. Wet doesn't get through it. Since I knew it was the sore, and NOT poop, my doc said it was fine to leave it on that way for a day, even though you could tell the ooze was through the wafer itself. Does that make sense? IT's hard to explain. It might help you be able to keep your wafers on longer.
Good luck - let us know what happens.
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy and ileostomy on August 24, 2008.