So, I have had my stoma for like 6 months now and it is temporary because I have step 2 of 3 steps in Oct for the j-pouch. So, I feel like I have noticed that the tip of my stoma is kinda swollen. I changed my bag last night so I took the old bag off and the tip really kinda looked swollen. So, I took a shower etc (I take showers without the bag when I change it) and it went back to shape like "normal" (whatever normal is....). Anyhow, I am periodically peaking at it (because I have a 2 piece system) and it just looks still kinda swollen. I did not remeasure last night but the wafer seemed fine. It is like it is just the top of it more-so. Now, I have changed my foods some because I have feeling so incredibly fat so could it be the salads, fruit etc that is doing it? It is not bleeding or anything and then I kinda think that maybe it is just my imagination. The color is certainly not bright red....it is like pink. It still puts out poo so I know that I am not blocked and I have no pain....no rash..... I did notice a couple of white dots (just a couple) when I changed it. Is it maybe like a yeast infection? I certainly hope that white dots does not means chrons. Any thoughts would be so very appreciated.
- July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications: Predisone - 5mg (and tapering to zero)
Supplements: multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.