First of all, congratulations on a successful surgery. I've spent most of this summer getting sliced
open too, so I know how difficult it can be. Hang in there. My situation is a little different from yours (they took my nemesis, the colon, out), but I definitely understand your feelings on the ostomy. I was more terrified of that thing than anything else in this world. Once things settled down and started working how they were supposed to, I couldn't believe how good I felt. I really, really didn't think that I would have ever hear myself say this, but if I had to choose living with UC or with an ostomy, I would take the ostomy in a second. I am also fairly young (28) and thought that the ostomy would just ruin my social life (whatever left of it there was). This was not the case at all. I was able to do things that I hadn't been able to for years.
As far as the reversal goes, it has been just over two weeks, and things are going well for me. The day of my surgery I felt great, but there were a few days after where the gas pains were intense. Otherwise, I guess that it has been pretty good. Life was more predictable with the ostomy. Learning to manage my new pouch is trickier than I thought, but you don't have to worry about
that. The positive to keeping the bag I think is that it really gives your guts a break and puts less stress on them. Without the bag, everything has to work a little bit harder. I think that in the long-run, I will be happy to be rid of the bag and using the bathroom in a relatively normal way. It will just be the better part of a year till I get there. So my advice is to enjoy the ostomy while you have it. Don't be ashamed, there is nothing wrong with it. I also blogged about
my surgery and recovery while I was in the hospital, if you want to check it out it is at rectum-dangnearkilledhim.blogspot.com. If worst comes to worst, I think that they can give you a new ostomy if you really regret getting rid of it, but I doubt that it will come to that. Good luck in the meantime. The 12 weeks will go by much faster than you anticipate.
Diagnosed January 2003
Budesonide (Entocort)- 9mg/day
Mycophenolate Sodium(Myfortic)- 720mg 2x/day
Mesalamine(Lialda)- 2400mg 2x/day
Infliximab(Remicaid)- 100mg every 8 weeks
Prednisone- as needed
Total laproscopic proctocolectomy with S-Pouch and ostomy placement June 2nd 2008
Ostomy takedown August 15th 2008