What is ileostomy?

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New Member

Date Joined Aug 2008
Total Posts : 8
   Posted 8/30/2008 11:51 PM (GMT -6)   
I was diagnosed with UC in March. So as u can c im new @ this...I've been reading sum stuff & I'm wondergin what is ileostomy? & wat caused u 2 get it?? Thank YOU

Regular Member

Date Joined Apr 2008
Total Posts : 99
   Posted 8/31/2008 11:01 AM (GMT -6)   

An ileostomy is a surgical procedure of diconnecting the small intestine from the large intestine (colon) and running the end of the small intestine out through an opening made in the belly so waste can travel out through there.  In some cases the colon is removed and others the colon is sealed off and left in to allow it to heal from a possible injury and will be reconnected later.  Where the small intestine is routed through the belly (known as the stoma) an appliance (pouch system) is worn to collect waste.  It is basically the same set up as a colostomy it is just that a colostomy is where a portion of the colon (large intestine) is routed through the belly.

The main reason why most of us have this setup is due to some intestinal disease progressing to a point where the use of medicines no longer worked.  This could be UC, Crohn's, colonic inertia and a host of other diseases.  Other reasons are injuries from accidents where the colon was damaged to a point of not being able to function.  I got my ileostomy due to having UC and medicines having no effect on it.  The prednisone I was on caused an almost grave situation so I elected to have the surgery so I would never have to go through that again.


Total Colectomy with End Ileostomy May 27th, 2008

Regular Member

Date Joined Aug 2007
Total Posts : 212
   Posted 8/31/2008 1:10 PM (GMT -6)   
Well put, John!

New Member

Date Joined Aug 2008
Total Posts : 8
   Posted 8/31/2008 1:13 PM (GMT -6)   
O wow that was very intersting & thanx for replyin back. & about the puch system? how do u empty it out or how can u go to the restroom by havin that? Is it noticable or r u only able 2 c it? Srry for all these questions but it's very intersting to hear more about it. THank u Jon

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/31/2008 7:00 PM (GMT -6)   
it is not noticeable if you have your clothes on, you can't even see it through a bathing suit. Different people choose different types of bags but what i wear work this way. You put a flange on yoru stomach, and it hooks there with a sticky wafter and bandaid material, then it has a ring on it, and a bag snaps onto that ring, think tupperware. Then that bag has a hole at the bottom that rolls up and closes with a sort of velcro like stuff. Although much stornger. When i need to empty it, usually about every four or five hours, depending on what i have eaten, i just sit on the toilet, and unroll it and empty the stuff into the toilet, clean the end roll it back up and go.
Other people wear ones that have clips at the bottom, and some people wear ones where you just throw the whole bag away.
The bag can be replaced with a clean one whenever and most people replace the whole setup every 5-7 days, i change mine on sundays and thursdays, i wouldn't have to do it that often, that's just my routine.
IT doesn't smell, it doesnt' show, it doesn't keep you from doing anything. It actually lets you do things you couldn't do when you still had UC, and it's far more convenient that using the batrhoom the regular way, lol.

Regular Member

Date Joined Aug 2008
Total Posts : 351
   Posted 8/31/2008 9:47 PM (GMT -6)   
hey summerstorm i was wondering what the piece is called that you say you use to keep your appliance in place under your clothes.  you say it's like tupperware.  lol.  i'll never look at tupperware the same way.  anyway where can i find something like that?  i can't stand the bag under my pants.  sometimes it even gives me an irritation on my leg.  thanks

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/31/2008 10:25 PM (GMT -6)   
oh no, i meant that the bag snaps to the flange like tupperware, lol
i fold my bag up and tuck it under my undies, keeps it off my legs and flattens it out!

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 9/1/2008 10:32 AM (GMT -6)   
That is how I wear mine as well - just fold it up and wear inside undies. Very discreet that way.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 9/1/2008 8:15 PM (GMT -6)   
yes and the best kind of undies i have found are the boy short kind and i get really cute ones at Jc penneys, they have a brand called flirtitude, and while i am not a teenager, i still like to have pretty undies, and they have ones that have lace on teh top and neat colors, i have hot pink ones with a really bright green, sounds funny but it's actually really cute! and the boy short style helps hold the bag in better.

Veteran Member

Date Joined Mar 2007
Total Posts : 679
   Posted 9/3/2008 12:01 PM (GMT -6)   

is it still possible to play sports like soccer where you were shorts?


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Forum Moderator

Date Joined Feb 2003
Total Posts : 1251
   Posted 9/4/2008 10:47 PM (GMT -6)   
Rolf Benirschke was a placekicker for the San Diego Chargers. He had UC and consequently had an ileostomy but still continued to play. After his surgery he played in the NFL for seven more seasons. He has written a book called Alive and Kicking about his UC and surgery. I'm sure if he can play NFL, you'll have no problems playing soccer :)

PS Rolf is also very active in helping young people cope with surgery in the US.
I have had an ileostomy for 32 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

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