Leaking problems

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Regular Member

Date Joined Feb 2008
Total Posts : 32
   Posted 9/11/2008 1:34 AM (GMT -7)   
Hi there! I'm kind of new to this. My 3 year old daughter had a total colectomy with ileostomy done about a month ago. In the past week or so we've been having a leak almost every day in the same spot. We have been changing the bag out every day when it leaks and it's getting old. I'm just wondering what we could be doing wrong and why it would be leaking in the same spot every time. Prior to this we were only having to change the bag (with a leak) about every 3 days. Any pointers? We are using Hollister One piece Pouchkins if that helps any.
Mom to 2.5 year old daughter with Crohn's Disease and Turner's Syndrome
dx. 1/08, currently on Prednisone, Prevacid, 6MP, Remicade, Iron and Zinc

Regular Member

Date Joined Feb 2008
Total Posts : 32
   Posted 9/10/2008 6:49 PM (GMT -7)   
Also, when I say leak, I mean it leaks round the edge of the sticky round part that goes over the stoma, the back of the bag. I'm sure there's a technical term but I don't know what it is.
Mom to 3 year old daughter with UC and Turner's Syndrome
dx. 1/08, s/p total colectomy with ileostomy 8/13/08

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 9/10/2008 7:22 PM (GMT -7)   
Shaz, our moderator, may have some knowledge about Pouchkins - she's had an ileostomy for a long time and has been around these forums.

The only thing I can recommend is to try using part of an Eakin Seal, which is made of a material similar to the "sticky round part that goes over the stoma". This Seal is stuck to the area just around the hole where the stoma goes through the sticky round part to provide an extra seal or barrier to prevent leaks. I really don't know much about the Pouchkins, but just assume they are a smaller version of what we adults wear.

I sure hope that you find some answers here, and please, feel free to post with Any questions you might have. How is your daughter doing with her ileostomy?

Welcom to HW.com,
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 9/11/2008 5:56 AM (GMT -7)   
Sometimes leaks happen in the same place b/c the skin is a bit lower (concave) in that area. There are several products that help but the one that worked best for me was strip paste. It helped to "level out" the problem area and keep a good seal. Your ET nurse (who has actually seen the stoma) may have some ideas (and samples on hand!) that will help. Also, contacting the major companies that make ostomy supplies and asking them for samples is a good way to go. I'm sure with a growing girl over the years you will try out many different bags to fit her changing body/activity level.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 9/11/2008 10:15 AM (GMT -7)   
I think justjenjen is right on the mark...do you have a catalog for your supplier? I think it might be Convatex that has many different items--paste, strips, rings--to help build up/reshape the stoma area for the wafer (they would be in the regular section, not the peds section).

The Eakin seal is something I use everytime because I have a very uneven stomach and it works great...it can even be cut/shaped to do the build up in a area that needs it. I am sure it can be very challenging with a growing child who's tummy probably changes on a daily basis!!! Educate yourself with what is out there and get with your/her ET Nurse...I am sure you'll get it figured out in no time.

Let us know what you end up using!
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