ostomy because of fistulas?

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T Jane
Veteran Member

Date Joined May 2003
Total Posts : 785
   Posted 6/9/2004 7:53 PM (GMT -6)   
Does anyone else have or had an ostomy because of fistulas?
If so how long do you think you'll have it.  and  What med.s are you on.
Tonia tongue
I Just tell myself, it could be worse !!!
                  T Jane

Regular Member

Date Joined Feb 2003
Total Posts : 31
   Posted 7/14/2004 12:00 AM (GMT -6)   
i have rec/vag fistula iwas told it would about 3 months ive had 3 surgies by 3 diff doc to try to fix it now its 2 1/2 yrs later and i still have it. the only thing good about it is i don't have to worry about getting to the the bathroom in time.Tracy

New Member

Date Joined Aug 2004
Total Posts : 1
   Posted 8/19/2004 12:15 PM (GMT -6)   
This is interesting.. I was first diagnosed with IBS in 89".
Since then, I have had 5 major surgeries all resulting from a rectal/vaginal fistula (which is still in place along with a bladder/vaginal fistula) and Diverticulitis. I received a call from my 1st cousin yesterday and she states I may have a rare genetic disease that is causing all my gastro problems.. the disease is Hollow visceral myopathy.  So far her and her sister have had to have Illieostomies..my self, and now Im finding out 2 other cousins suffer with bowel motility as well.. ??
Last Feburary, everything was made permanent with the Illieostomy..it sucks, Im very depressed about it all. The surgeons have tried to reconnect everything 3 times and used the gricillis muscle from my left leg to patch the hole..nothing has worked..Im in constant pain!!!! I have the most horrible scarring on the inner leg from the attempted muscle repair..aarrgghhh!!!!
OH..and the scars left from the colostomy will not heal properly.. my Drs are not working with me anymore, and Im being forced to seek other methods to control pain levels...
One time when I had the colostomy, I went 13 days without passing anything through..the gastro Dr told me" I can do nothing for you, you have IBS."  He further stated all he could do was give me laxatives and pain medicine, and refered me to a different gastro DR. He discovered the Diverticulitis, and thats when all hell broke loose for me.  We thought we closed the fistula, and like I said..this past year gave up!

New Member

Date Joined Aug 2004
Total Posts : 5
   Posted 8/23/2004 5:26 AM (GMT -6)   
Plaese seek a second opinion about this!!!!

I have had 3 fistula surgeries and they have been nothing but heart-ache!

I would not let any doc cut me without a second - third or even a fourth opion!

New Member

Date Joined Sep 2003
Total Posts : 9
   Posted 11/13/2004 2:44 AM (GMT -6)   
Hey...I am 23, college student...I have had crohns disease since i was 12.  Within the past 3 years I have had multiple (more than 5) perio-anal fistual tracts form.  I've been to the Mayo clinic in Rochester, MN 3 times and had Seton sutures placed in the fistulas.  I am currently taking Purinethol (75mg) and recently stopped Prograff (4mg) due to some side effects.  I had a loop-ileostomy 3 months ago to try to heal the fistuals...so far no luck.  Please E-mail me at BradyB978@aol.com to talk more, as I dont visit the site very often to check postings.
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