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laymanz
New Member


Date Joined Sep 2008
Total Posts : 17
   Posted 9/17/2008 8:05 AM (GMT -7)   
right now i have to get a blood transfusion twice a week my hemaglobin drops to about 6 in between transfusions i was wondering if any of you had this happen and did it stop automatically after the surgery?

spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 9/17/2008 4:58 PM (GMT -7)   
i had really bad anemia before surgery. i didnt have to get blood transfusions as often as you do, i guess you're losing a lot more blood than i was. but after surgery all my iron/hemoglobin/RBC levels became normal pretty quickly. i feel great now!
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


laymanz
New Member


Date Joined Sep 2008
Total Posts : 17
   Posted 9/17/2008 6:25 PM (GMT -7)   
thanks for the reply spongebabe....i was thinking i would never feel normal again....they will be doing the surgery on oct 6 removing colon and rectum no chance for reversal...but when i think of how i am feeling now i am ready to get my life back

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/20/2008 5:43 PM (GMT -7)   

Laymanz,

Before surgery, I had active Crohn's and would get anemic and have blood transfusions, too. At its worst, my hemoglobin went down to a 6, and I was extremely exhausted, so I really feel for you. sad

Ever since my colon and rectum removal two years ago, I have been disease-free and my blood levels have been excellent, so this surgery will really help you, too.

Hang in there, October 6th is right around the corner!

Cecilia

 



Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 9/23/2008 6:45 PM (GMT -7)   
I was slightly anemic right after my surgery while still in the hospital but I guess not low enough to give me a transfusion. Had surgery in Oct '07 (wow..almost a year now). By January I was back to working out. Was feeling great, expect for some small intestines spasms.

But then I started getting shortness of breathe and at one point I passed out in the bathroom. The blood test showed I'd become very anemic. My count had gotten down to 6 like your's. Was put back in the hospital and given blood transfusion.

Sent back to GI doctor and after several tests he discovered I had developed bleeding ulcers as a reaction to the staples where they had reconnected me.

I have to watch my iron intake and get my blood tested every few months to make sure I'm not getting low.

I still feel better now than I did before the surgery. You have some hard months ahead, but it will be worth it. You'll feel much better once you're recovered from the surgery.
Control is an illusion. The only control we have is our response to people and situations. - Kim Martin

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