I met with my surgeon yesterday in what I thought was a confirmation appt. about
having my colon removed. Last time I met with him he pretty much diagnosed me with colonic inertia and said he suggested I have my colon removed, BUT he wanted to do one more test to know for sure... which was a pelvic floor exam, where they test the nerve endings in the rectum and sensor reactions, and a bunch of other things I don't really understand.
Well me and my mother go into his office and be begins to tell me that my pelvic floor test was completely abnormal and that the problem is not in my colon, but in my rectum. He started to say that having my colon removed would be completely counter-productive and that we needed to figure out something else to do. He said the my rectum had "forgotten" how to relax and that when I was bearing down and retracting in, the muscles weren't responding correctly. So he went into the whole drawn out speech about
how I needed to go through bio-feedback and muscle re-training, that there was nothing else that could be done... Well at this point, I lost it. I started bawling and having a minor break-down in his office. That is NOT a solution and I felt like I was getting written off once again by another doctor.. So I started going into a minor tangent about
all my symptoms and how I didn't think that was going to help.. well in my tangent I mentioned the fact that I have, what I thought were, internal hemmoroids that showed when I was going to the bathroom and straining and how was I going to fix that, too. Well he got really shocked when I said this and had me explain it more thoroughly... He like jumped up and said he wanted to do an examination on me right then, so he got a scope and looked inside my rectum while I beared down and whatnot... Well it turns out I have full blown rectal prolapse. My surgeon was in shock, he said he NEVER would have diagnosed this on a 23 yr old and that I was the youngest patient hes ever had to experience this level of rectal prolapse. I think he felt really bad for almost writing me off on a situation that could have caused me SERIOUS problems if not fixed.
I just can't believe what would have happened if I hadn't chose to have my little tangent like I did.. If I hadn't started just talking out my frustrations, he would have let me walk out of his office without a second thought.
But ANYWAY, I want to know if anybody else has had this surgery... I am have the last 6-8 inches removed in order to make room for raising the walls of the rectum. After the colon portion is removed, he is going to take the excess/slack that occurred in my rectum wall to cause the prolapse and pull it up and attach it to the higher end of my colon that was left...
I think what scares me the most is that I don't know if this is actually going to fix anything! He said the prolapse was CAUSED by the inability of my muscles in my rectum to accurately respond to sensations. So even after the surgery he says I still need to go through muscle retraining... I just want to CRY, I feel like I'm about
to go through all this hell and STILL be sick, constipated, bloated, and miserable..
Somebody with any experience/knowledge about
this, PLEASE help me!! I'm soooo upset about
this. I felt like with having my colon removed, everything was just gonna get better.. And I understand him not wanted to do a surgery that may hurt me more then help me because that's not the problem.. But I just don't see this surgery as a solution for my chronic constipation which I just want to go away!!!