To reverse or not to reverse?

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New Member

Date Joined Sep 2008
Total Posts : 1
   Posted 9/25/2008 9:31 PM (GMT -6)   
Hello out there,
I've have had an ilesotomy for 8 years, am comtemplating a reversal, and am not sure what to do.  The surgeon who performed my ileo, for what would have been terminal colitis, said I was not a candidate for reversal, i.e., lucky to be alive after the bout I had been through.  But now, years later, other doctors see no reason not to.  I'm torn.  I'm doing just fine, in great health, have a healthy stoma and no issues--oh, yeah, I've had the occasional blow out--but the real issues are 8 years of bad body image dreams (bag related) and a serious concern about maintaining independence as I get older.
I know any abdominal surgery is a huge deal.  From my colectomy and an earlier C-section, I'm familiar with the recovery issues.  Now reading all this on this site about after effects of reversal--bowel control issues, dietary restrictions, pain, complications at the stoma site... I don't know how to weigh the risks and rewards.  Your thoughts?
Rita2 confused

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 9/25/2008 10:00 PM (GMT -6)   
well personally i chose a perm ileo cause i never ever wanted to use the bathroom the regular way again, lol.
If you are happy with the way things are, then stay with them, that's just my opinion anyway.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 9/26/2008 8:06 AM (GMT -6)   
I can't advise you on your decision but I did have a reversal and have never regretted it. I have no diet or food restrictions and my jpouch gives me the freedom to backpack which I don't think would be possible with an ostomy. If a reversal didn't work for you, you could always go back to the ostomy or a k-pouch. But you won't know unless you try.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 9/26/2008 8:21 AM (GMT -6)   
I agree with suebear...You can try the reversal and if you are not happy with things after the reversal, you can always go back to an ostomy, or an internal pouch...if you are lucky to be a candidate! I did have a reversal many years ago but went back to an ileo...I can happily say, for me, I have NO regrets!

Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 9/26/2008 3:28 PM (GMT -6)   
well, in my case, my rear has not healed no reversal for me, I finally met with the surgeon again and am waiting to hear the date for my total proctocolectomy.....I am actually excited!!!
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?

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