I thought it might be a good idea for everyone to make a list of essentials or their very best tips for people who are new to having ostomies. I use to have a colostomy bag when I was younger and I know what a huge pain they can be and how so much of it is trial and error. There are so many things out there to help out, but I didn't learn about
most of them until I had mine reversed. So I thought it might be nice to just make a short and sweet list from the experienced ostomy owner, to the inexperienced ostomy owner.
One thing I wanted to mention was that when I had mine, my dad went to the hardware store and for under $10 bought some simple supplies and made me a great hose that connected to the faucet in the bathroom and made it so I could clean out my bag SOOOO much easier. It was so amazing and I dont know what I would have done without it. They taught me to use cups. To keep refilling them and pouring the water in and swishing it around, much harder. He is pretty creative. I had a long one for public restrooms as well.
I am going to see if he can tell me the exact things he used to create it so that you all can duplicate it if you want to. It was pretty simple and much less money than other products. Recently I asked him if he could make one for a friends father who has a colostomy, and he said of course. He said that he would even try to make it so they could flip it on and off without having to get up and turn off the faucet, which helps if you dont have assistance. He is also trying to figure out a way so it never has to be detached from the faucet, because that was always annoying for us since we only had one bathroom to have to screw it on and off everytime.
I will post the supplies and instructions if I can get him to be able to remember how he made it.
20 Yrs old. Female.
Short Bowel Syndrome due to many resections. Only 6 ft left.
Can't absorb nutrients, stay hydrated, keep energy.
Currently taking: Calcium, Vit C, Iron, Potassium, Creon, Prevacid, MCT Oil, TPN, Ultrase
Had 15 surgeries. 9 on stomach, others for shunts ect.
Have a Portacath. Had a Colostomy at age 12.