Ostomy question

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New Member

Date Joined Oct 2008
Total Posts : 5
   Posted 10/6/2008 10:36 AM (GMT -7)   
Hi Iam new to this site and have a question about ileostomy reversal. I had my colon removed after having my second child. I had a blood clot and it stop blood from going to my colon and it died. So they had to give me emerency surgery. It has been a year now and they are trying to reconnect me and take me off the pouch or bag(dont know which word to use).
The problem is my rectum is inflammed and they dont know why. they have treated me with remicade, thinking that i have a form of IBD. The remicade isnt working. My doctors are now trying to take my rectum. And for anyone who have had a bag know you do not want it for life. Especially at the age of 28! If anyone can think of or have heard of a simular situation please respond. I cant find anything else on my problem.
And on a personal note... I think all of you on this site is great!!!! I wish i would have found it when i first came home from the hospital. Reading stories about others is so refreshing, just knowing your not alone and others have gone thru what you are going thru. So thank you all!!

Charlotte Gilman
Regular Member

Date Joined May 2008
Total Posts : 100
   Posted 10/6/2008 3:41 PM (GMT -7)   
Make sure your doctor knows what "diversionary colitis" is, and that s/he explains to you in detail why s/he is convinced this isn't it.

Human bowel needs fatty acids from the fecal stream to be healthy. When you cut off the flow of those fatty acids (as with an ileo), there will be inflammation in the bowel that is left. How they tell that from IBD on a scope or biopsy, I don't know--but they should be darn clear that that's not what it is before they go taking anything else out.

Even if you have UC in the remaining rectum, you could have a j-pouch instead of a completion proctectomy. Make sure your surgeon (not just the GI) knows IBD like the back of his/her hand!

New Member

Date Joined Oct 2008
Total Posts : 5
   Posted 10/6/2008 5:50 PM (GMT -7)   
Thank you Ms Gilman. I will keep updated my case. Again Thanks
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