Possible colostomy?

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Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 10/8/2008 9:41 PM (GMT -6)   
I finally did it...after 10+ years of Crohns, numerous surgeries, 3 strokes, a nation full of my soiled under wear, I did it.  I phoned my Dr. and made an appointment to see him about having a colostomy. 
In all other aspects, my Crohn's is manageable (NO drugs thank you kindly) or rather I can handle the symptoms.  What I can't abide any longer is the frequent washroom trips, not being able to take car trips or, Im being honest here, my inability to "hold" what comes out of the rear end. 
Im getting married at the end of the month (he supports "our" decision fully), going back to school(Acupuncture) and I need a better quality of life. I realised tonight how I have changed my life according to my washroom needs, I waited until the latest time possible to go to the grocery store, so it would be less crowded and the one washroom they have may be free. Im tired of having a change of panties/clothes in our cars, and stressing about the road trip I have to take on Friday to go see my mom (3 hours away), ANY road trip actually. I hate not being able to get on my motorcycle and just driving off into the sunset!
My question to all of you is: Is this feasible? Anything I should be concerned with/about? Any feed back (pro's or con's) would be wonderful!! I think maybe I am trading one set of problems for another, but it's a risk Im willing to take! Im also concerned about swimming, can you wear a bathing suit? To all of you Im sure this sounds silly but I love to swim and hate the idea of not being able to wear a suit.
I do have to say, last night I read many of the post's on here and they had me in tears of laughter and understanding. Thank you to everyone for letting us know we are not alone!
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 10/8/2008 9:57 PM (GMT -6)   
You can swim! Look at my post about swimming, i spend six hours in the pool straight (which i do not reccomend for the sake of your skin, lol) but i had NO problems with my bag, and i look darn cute in my suit if i must say so, lol. No really, i have a tankini with a skirt bottom, and you cannot tell.
You could be able to do whatever, road trips, camping, picnics.
On the way home from having surgery we stopped at mcdonalds and i got fries and a milkshake and i ATE THEM IN THE CAR!!!! which i know sounds stupid but you know what i am talking about, i didn't worry where a toilet was, if there was a traffic jam. When i ate those fries i was crying, happy crying though
I have had my surgery since april 2007 and there has not been a day that has gone by that i have not foudn some little stupid something to be happy about. Earlier today, i decided to go out and eat with some friends tonight, on the spur of the moment, no worries, we went out and did some other stuff.
Firday i am going to october fest, which is an outdoor festival, something i could have never done before!
In summary, it's great!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 10/10/2008 10:36 AM (GMT -6)   
For me I was mentally prepared and WANTED it...I think that makes a big difference. I swim(wear a tankini, too), travel, ride horses and can do anything spur of the moment. I won't lie, recovery is not easy, but worth every minute...check out some of the past posts and I think you'll see how good life can be:)

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 10/10/2008 8:41 PM (GMT -6)   
Honestly, the only thing I don't do now that I did before my surgery was sleep on my stomach. But, for what it's worth, one of the first things I did after my surgery was go hot air ballooning. That was the real litmus test, because the closest bathroom was 1000 feet straight down!

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 10/10/2008 10:56 PM (GMT -6)   


I, too, had CD and was in so much pain from it for several years.  I didn't Want the surgery when I had it, but I am really glad that I did.  It was a long recovery for me.  Just when I thought I was gaining some strength, I'd get wiped out just thinking about getting out of bed!  But, each day was a new experience - some days were trying and some were good.  Each day got better and here I am, several years down the road, and it is just part of my life now.  I remember handfuls of pills, suppositories, steroid enemas (Remicade and some of the new drugs were not around then).   No CD, very few  meds right now ----on some maintenanace meds to control fast output due to so much intenstine being removed, a B12 shot biweekly, some vitamins are all very good reasons to be happy with my surgery. 

Remember, make this decision based on what is right for your situation.  What is your quality of life right now?  What improvements can be made to it w/o surgery?  What will your quality of life be after surgery?


Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 10/11/2008 3:23 AM (GMT -6)   

I was diagnosed with Crohn's in 1999, too, and can completely relate to what you're going through. After 7 years of being sick and always having to be near a bathroom, I decided enough was enough, and called my doctor to schedule surgery. I'm proud of you for taking that next step toward getting your life back. The only thing you'd be losing is a diseased colon, but what you'd be gaining is health and freedom.

After surgery, you would be able to go swimming, take long car or motorcycle trips, work full time, exercise, eat good food, sleep through the night, and shop for hours without being tired or having to be near a restroom. I wish that for you.

:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 10/11/2008 9:54 AM (GMT -6)   
i actually do sleep on my stomach still, i start out that way, but roll over during the night. But i have this waterproof pad i put under me, i sewed a sheet on top, so it's like sleepign on a sheet, and it gives my some peace of mind that if i should have a leak i won't have to change the whole bed. But anyway, i seem to roll over as the bag fills i think i sort of know.
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