help needed please for my dad

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frangames
New Member


Date Joined Jun 2004
Total Posts : 1
   Posted 6/17/2004 2:42 PM (GMT -7)   
My Dad had to have an emergency colostomy in March this year, he was on life support for 10 days afterwards and is still poorly. He is not coping with his bag at all well, as it was an emergency his stoma is in the wrong place and the bag keeps coming off (mainly at night).
 
He is also having trouble with it smelling. It doesn't smell nearly as much as he thinks it does, but it does smell when he empties it, which makes him really upset -  he refuses to go any where (ie on holiday) as he feels that everyone is staring etc, and feels that everyone can smell him.
 
If anyone can give me any help about what he (or I) can do, i'd be greatful - anything; help with making him feel better, ideas to keep the bag on, tips to reduce the smell, anything at all
 
thank you very much
 
fran

Pin Cushion
Regular Member


Date Joined Feb 2003
Total Posts : 442
   Posted 6/17/2004 9:47 PM (GMT -7)   
Hi fren,
I am sorry to hear about your dad.
Here are some suggestions of mine:

Ostomy / wound nurse, Great place to get basic infomation on ostomy care and get some samples of supplys

Local support groups, If your dad won't go, you go you will be amazed at how much fellow Ostiomates will want to help both you and him.

Keep posting any questions here, we arn't as busy as we used to be but there are a few of us and we will help in any way we can.

as far as everyone being able to see the bulge read this post I did a while back on that subject, share it with him, humor is my biggest tool I have to keep mysefl sane! just copy and paste the following link:
http://www.healingwell.com/community/?f=33&m=114075

Hang in there!
AL
* I think it may be time for a colorful metaphor*


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 6/18/2004 12:05 AM (GMT -7)   
HI Fran
 
Having the surgery as an emergency as your dad has done must come as a big shock to him. I hope he has a stoma nurse to help him through this. If not, see if the hospital can refer him to one. They're invaluable for a new ostomate.
 
his stoma is in the wrong place and the bag keeps coming off
 
Whereabouts is his stoma located?
 
He is also having trouble with it smelling. It doesn't smell nearly as much as he thinks it does, but it does smell when he empties it, which makes him really upset -  he refuses to go any where (ie on holiday) as he feels that everyone is staring etc, and feels that everyone can smell him.
 
There are deodorisers made esp for ostomates to combat this problem. Ask at his ostomy supply store for some samples. Also, striking a match in the loo will get rid of odours. Remind him too, that 'bowel intact' people stink up the loo as well, so he's not alone by any means :D
 
If anyone can give me any help about what he (or I) can do, i'd be greatful - anything; help with making him feel better, ideas to keep the bag on, tips to reduce the smell, anything at all
 
Have a look at http://www.ostomates.org/leaks.html   There's some tips there for stopping leakages.
 
Pin Cushion's advice on contacting a local support group is a great one. Often, they have what's called 'ostomy visitors' who will visit a new ostomate in their home and reassure them that life can go on with an ostomy. Let us know whereabouts he lives and I'll see if I can put you in touch with one near you.
 
Good luck and keep posting :)
 
Shaz
 

I'm not a complete idiot - some parts are missing!
________________________________________________

Ileostomy for 27 years since I was 10 years old, due to UC.


I hate UC
Regular Member


Date Joined Jan 2003
Total Posts : 100
   Posted 6/18/2004 9:39 AM (GMT -7)   
Hi-
 
As for odor, I use a product called Hollister M9 drops.  It's a blue liquid that I squirt ~20 drops into my bag after each time I enter and I have no odor at all.  I have had a few accidents and you could be in the same room and not even have smelt anything. 
 
Did your dad see an ostomy nurse while in the hospital?  If so, I'd contact that person; if there is not an ostomy nurse available, I agree with the others, get an ostomy visitor or go to your local UOA meetings.  You can find the nearest meeting site at www.uoa.org (the United Ostomy Association.)  Hopefully, one of these people could help identify what the problem is (that is, why he keeps leaking) and point him in the right direction.
 
I'll occasionally write companies and state that I am interested in one of their products and I have gotten a few free samples.  It may be worth a try. 
 
Good luck!
 
Please visit my UC Website


Pastor Dave
New Member


Date Joined Jun 2004
Total Posts : 4
   Posted 6/20/2004 8:16 PM (GMT -7)   
One of the BIG helps for me has been an osotmy belt ... you can order them where you get your dad's supplies... stops the appliance from coming off at night! The smell thing was a big thing with me at first, I could smell it even when others said they could not ... tried the deorderizers - they work, but eventually realized it was just me! I am a Pastor and have shared all this with my church family... the kids think I am the coolest because I have an artificial Arse!!! Humor is EVERYTHING in dealing with an ostomy ... tell your Dad I'll be praying for him and would even consider calling him! God bless & keep smiling!
Pastor Dave
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