Hello to all,
New to site. I am hoping someone can shed some light as to what am going through. Yesterday made 3 years of rectal cancer survivor and it's been a long journey. I have a colostomy for life. The problem I've been having is with my stoma. During my journey, I"ve had a prolaspe, ostomyhernia, and a blockage . I had the prolaspe and hernia repaired; the blockage worked its way out.
My stoma is what is called an outie, it goes way out. It looks like a monster, the way it bulgues out, buldeg on top of buldge like just out of a scifi movie. I wish I knew how to make a web page or something like that so that I could post it. I was very disapointed when I saw that my stoma was not shrinkig as small as others. My wafer size is 2 1/2" and when it bulges I have to wait for it to contract to small and quickly put on the wafer. I get pain in my lower back and it goes to the left side where my stoma is. I have taken pictures and video and shown it to my surgen. She doesn't see anything wrong with it. As long as I have out put all is fine. I also mention my pain and she referred me to pain management. Pills don't work. As I type here now I bend over with pain.
I also have Sjogren, osteoporosis, RA, hypothroidism, depression. If you can shed some light I would be grateful.
Cancer Survivor - Colostomy '06, RA, Sjorens, Fibro, Depressed, Hashimoto's