I am new to all of this....

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Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 10/20/2008 11:29 AM (GMT -6)   
I had bowel resection surgery on Sept 23.  I now have an ileostomy.  I have been home from hospital now for 2 weeks and feeling stronger each day.  I have homecare nursing for now and they have been changing my appliance for me.  They will start getting me involved in this procedure this week.(ugh)..I am feeling really anxious about this.  So far I have been dealing ok with it (I think).  I had vaginal prolapse surgery in 2001 and a repeat of this in 2006.  The first surgery had let go and the mesh they used fell into my bowels. When they repeated this procedure in 2006, they saw the mesh in the bowel, but decided to leave it there, thinking it would not cause me any problems.  HA!  I have had major bowel problems due to the mesh puncturing holes all through my bowels and internal organs (appendix etc).  I was bleeding alot (daily) from bowels, and was so constipated I could not have a bm at all without mega doses of laxatives. This went on for over a year.  Needless to say I felt like h---.  I am now so very grateful for this little bag on my side, if it means I can feel good again, and have some enjoyment to life.  yeah It has been such a long time.  I am married and have such a strong loving supporter in my husband.  I am truly blessed.  This is not how I envisioned my life to be (sporting a bag), but if it means I can have a good quality of life...then I am thankful. 
Thanks for letting me get this out.  I have been feeling rather isolated since I had my surgery, and am really happy to have found this site. tongue

Regular Member

Date Joined May 2008
Total Posts : 159
   Posted 10/20/2008 12:29 PM (GMT -6)   
welcome............this site is wonderful..........and everyone has a story... and we all have been thru some of the same things. we understand the emotional side of this.and i so glad you found us.
hope you stop by often

Your so lucky to have a strong and loving husband for you. some of us dont have that. and it is so nice for you and for others who do have it.
Good Bless you.

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 10/20/2008 5:22 PM (GMT -6)   
congratulations...im glad u feel that way. i do too. i can't lie tho, b/c im not married and haven't found that "special one" that intimacy/male female thing does bother me sometimes when it comes to the bag....im still dealing with it, but im happy bc im healthy and i've lived too many years being unhealthy....so cheers to our little bags :o/ lol

25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 10/20/2008 6:32 PM (GMT -6)   
Dear Roddiesgirl:

You have a great attitude and your prospects seem bright. This site is nothing short of wonderful. The support and education I received here literally carried me through some dark times. Ask questions, research old posts and I am sure your quality of life will be better!

Ileostomy in August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. Reversal May 2008.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 10/20/2008 9:10 PM (GMT -6)   
Wow, what an ordeal you've been through! I'm so glad you're feeling better and found this site. Once you get the hang of the whole wafer changing procedure, you'll be able to slap on a fresh one in 2 minutes flat, even with one hand tied behind your back! hehehe smilewinkgrin

I also have a husband who's been kind and supportive through my years of illness and subsequent surgeries, which I am very thankful for. Since you're new to all of this, please ask us any questions you may have, and we'll do our best to answer.

Take care,

:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 10/21/2008 9:00 AM (GMT -6)   
Thank you Thank you Thank you!  Thank you for all of your warm replies. All of your support means so much to me!  I no longer feel quite so isolated.  This is an awesome website!  I am learning so much by reading the postings...Thank you again from the bottom of my heart!!! smilewinkgrin

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 10/24/2008 3:48 PM (GMT -6)   
I haven't logged on this site for a few days but just wanted to say "welcome" and that this truly is a very wonderful place to gather great information and tips. The folks here are really helpful and nice so ASK away!!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 10/24/2008 5:02 PM (GMT -6)   
Thanks Peggy113....I am reading some back posts and getting some helpful hints in managing this whole thing!! :-)
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