please help skin is horrible under wafer!!!

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RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 10/28/2008 12:03 PM (GMT -7)   
Hi Everyone...
I haven't been posted in a while but I do come to check on u all.  I hope ur all well. smilewinkgrin
 
I have never had a problem with my skin under the wafer until recently.  It's been so bad!!!! It itches and burns and bleeds and keeps getting wider.  I've been changing the appliance every other day when it used to last me 5 days no problem.  I use the powder and a skin protector, didn't change anything so i don't understand what the problem is.  I really need advise on what to do for my skin to heal. confused   Please help
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 10/28/2008 4:04 PM (GMT -7)   

I had my appliance changed today with the help of my homecare nurse..(I'm still a newbie to all of this)..and the skin around one side of the stoma is red raw like meat.  It's sore also.  She put some stoma powder on it.  I hope this works.  This is the first time I have had a problem with the skin around there.  I had my ileostomy surgery Sept 23.  I hope you find a solution to the problem.  If you do (no..WHEN you do...gotta think positive)..please post and let us know ok???

Thanks! confused


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/28/2008 8:01 PM (GMT -7)   
Rita,

I'm sorry you're having skin problems. sad Have you called your doctor about it yet? I would get in to see them, so they can diagnose what's going on and give you some medicine to put on it to help heal it. I wish I could be more help.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/29/2008 9:40 AM (GMT -7)   
Definately see the doc/stoma nurse to see if anything major is going on...

Have you measured your stoma lately? Mine did a similar thing for a week or so, but my size/shape changed a little (I am 8 mos post op). I also use the powder but I don't use any skin prep anymore...have you tried an Eakin seal? It conforms around your stoma, closer to it than the wafer can safely be, and does a good job protecting the skin. My problem cleared up within a week...but boy was it PAINFUL during the first couple of days:(

(btw, the Eakin is in place of paste)

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/29/2008 7:33 PM (GMT -7)   
I am an Eakin believer as well. And I only began using it a couple of years ago after having my ileostomy for a long time! I use only a strip in place of the stoma paste. You might try it, with your powder - whatever you are doing to treat the sore area.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 10/29/2008 7:36 PM (GMT -7)   
I dont have a solution but I have compassion. I am having skin issues now with my loop ileostomy and it hurts. I changed my pouch a couple of days ago and there was greeen pus. It has gotten better but having skin issues is a tough road. I will keep you in my thoughts.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 10/29/2008 8:16 PM (GMT -7)   
Thank u all for ur responses. Ohio and Peggy, I did try the Eakin and it didn't work for me unless I didn't know how to apply it correctly. I will call for another sample. I'm willing to try anything at this point. I'm so tired of it and can't figure out where I went wrong if I didn't change anything. We measure it constantly and cut the wafer accordingly. I wish I can just take it all off and hang out without it for a few hours to let it breathe but it's so active because of my short bowels I can't. Even in the morning I can't because I have to get up early to start on my eating. I have EAT EAT EAT and EAT some more to maintain my weight. UUGGHHHHHHH!!!! It's so aggrevating!!! If anyone comes up with something please keep me posted.

Thank You all
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/30/2008 7:06 PM (GMT -7)   

RITAS,

Here is a thought --- this happened to me about 5 years ago.  Just out of the blue, my wafer quit sticking.  I even went so far as sending a wafer to Convatec (after I called and they send a biohazard pouch) thinking maybe I had a defective batch.  Someone from Convatec called and recommended that maybe I should use an adhesive remover.  And ya know, it helped a lot.  I also added a convex insert, and Eakin seals.   The skin around the stoma almost looked shiny, but didn't feel sticky or tacky.  Now that I use the adhesive remover pad (like an alcohol prep pad), my skin isn't shiny and the wafers stick really well.

Just a thought --- maybe you already have tried it. 

Good luck to you,

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 10/30/2008 11:44 PM (GMT -7)   
Though I'm sure your surgeon, GI or ET are well meaning ,you're better off with a dermatologist. I'm saying this as a result of my own experience. If you have a problem with your skin, then see a doctor that specializes in it without having to do any guesswork at your expense.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/31/2008 6:08 AM (GMT -7)   
Peggy--I didn't know that about the shinny thing...good to know!

RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 10/31/2008 8:22 AM (GMT -7)   
thanx Peggy keep thinking..haha..I've tried that too. The adhesive remover is a very important part of my process
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 11/16/2008 7:38 PM (GMT -7)   
Hi Rita,
 
I just wanted to add to my previous post. If your skin isn't showing signs of any ulcers, you might want to try putting Maalox on your skin. Let it dry before you put the appliance on. Depending on the cause, this often works very well. Good luck!!!
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