I was terrified. So terrified that the nurse told me I could change my mind even if I was on the operating table (before they put me to sleep, of course). I was balling my eyes out. But, I gotta tell ya, I was SO GLAD I did it once it was over because the hardest part was making the decision to do it. ONce it was done, there was only one way to go. I gotta tell ya, living with a bag is managable. Living being sick is not managable.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications: Predisone - 5mg (and tapering to zero)
Supplements: multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.