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Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 10/30/2008 4:40 PM (GMT -7)   
shakehead  am back in the hospital!
   I came in through the Emergency Room aournd 1am on Tuesday night (or I guess that would be vey early Wednesday morning).
I had really bad pain that started around 5pm that was not responding to Percocet /Tylenol 3s nor had I gone to the bathroom since Sunday.
   Free healthcare in Canada meant I only waited 7 hours in unbearable pain before a doctor was free to see me.
I have to say Canadians have become used to these crappy wait times but the the situation was made worse during my 7 hour wait not because of the the unbearable physical pain but the fact that the 3 idiots who arrived after me that had been in bar fights that night were given priority because they were bleeding. shakehead
I wish I had the choice to pay for healthcare....

It appears I have an obstruction which I am sure some of you are familiar with.  It took 36 hours of constant morphine to get the pain under control (which happened around 5am this morning).  Now that I am pain free I am constipated and the nurses do not understand why I have not had a bowel movement.
   hmmm.. could it be the pain killers or maybe the fact that I have not had any food in almost 48 hours?!?
 
Another great thing about our free healthcare!
The only unit that had a bed available was the Pallative Care unit and it did not have a room free, just a bed.
I am parked in the hallway,which is one of the new initiatives our government has decided to use to deal with our overcrowded hospitals - rather then invest the necessary money.
   I have been going for walks but only passing gas so far... cross your fingers for me as my brother and I are having a halloween party on Saturday!
 

 


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 

Post Edited (Angela101) : 10/31/2008 6:01:09 PM (GMT-6)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/31/2008 6:17 AM (GMT -7)   
What a terrible time you are having!! I am so sorry you had to go through that...

Passing GAS...you are on your way to a BM!! I'll keep my fingers crossed.

RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 10/31/2008 8:39 AM (GMT -7)   
I hope u get better and do what I do in these hospitals. Scream ur brains out and get attention because if u wait to long things can become worse than they would of been. This is not the time to be shy. Good luck please keep us posted and I hope u make it out for ur halloween party!!
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/31/2008 4:49 PM (GMT -7)   

Oh, Angela, I'm so sorry you're having to go through this. sad I hope the obstruction clears soon! Please keep us posted on how you're doing.

Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/1/2008 11:01 PM (GMT -7)   

I am finally having bowel movements, but had a major scare last night.

 My temperature and blood pressure spiked and I started having unbearable sharp pains in my stomach.  The doctors were concerend I may have perforated my bowel.  I have had lots of pain in my life but this was a new one.  There was no way I could get comfortable!  They ordered Xrays and a CT scan asap and I am not sure exactly what happened but after drinking all the Telebrex and having the CT scan I had a normal bowel movement.  My temperature dropped and I felt actually pretty good. The doctors said my scan and xrays looked normal. 

The only thing I can think of is that whatever was blocking my bowels was BIG combined with the fact that I havent used my muscles for going to the bathroom in 18 months meant the pain was unbelievable!  Man oh man, I would not wish that on my worst enemy.  So I have been running to the toilet every few minutes and finally allowed to have fluids.  I snuck some toast to my room tonight as I was starving - so far so good!


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/2/2008 6:44 AM (GMT -7)   
I share the obstruction issue with you, but I have an ileostomy.  Many times, the pain gets WORSE before it gets better.  And probably drinking all that stuff for the scan "pushed" it through.  Maybe it was an kink in the intestine - horribly painful; maybe it was scar tissue or adhesions causing the obstruction - they begin growing right after surgery in done and there is no stopping them - also horribly painful; and in other cases, it is the food or the combination of foods and lack of liquid that can cause them.  WHO KNOWS?!!!   Except I fully sympathize with you and have experienced several myself.  Fortunately, I have been able to avoid surgery.  So long as my temperature doesn't spike and I don't throw up, I manage with pain meds, relaxing meds and TONS of clear liquids.  Sometimes it only takes 24 hours, other times, many days.  But my gut hurts to touch it for literally days afterwards.  The vibration of walking even is uncomfortable.  So you see, I really do sympathize with you and wish you to never have another obstruction.  Best of luck to you and do let us know how you are doing.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/2/2008 11:50 AM (GMT -7)   

Hey Peggy,

thanks for the post.  I feel like such a baby for taking so long to recover!  It does hurt to walk and I am soo tired.  I feel like I should be up and about.  I think I recovered from the ileostomy reversal better then I am recovering from this!  I am glad to hear thats normal... whatever normal is.

I am allowed solid foods today but am taking it very very slowly.


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/2/2008 9:12 PM (GMT -7)   

Angela,

I'm sorry you had to go through so much pain, but am glad that things opened up for you. Food tastes great, doesn't it?

I had an obstuction back in March. Scar tissue had strangled my small intestine, so I had to have surgery to fix it. It was painful leading up to it and painful during recovery, because I had a 6" incision in my abdomen - ouch! I'm glad you didn't have to have surgery, and you'll get to go home soon.

Take care,

:-)  Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 11/3/2008 1:30 AM (GMT -7)   
cry   cry cry I am so sorry that you had to go through all of this and I hope you are on the mend.GOOD LUCK.
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/6/2008 1:59 PM (GMT -7)   
I made it home!
   Taking it very very slowly!
As much as I complain about Canadian healthcare over the last 8 days in hospital I had:
2 Abdominal Xrays, a CT Scan, a small bowel follow through, and a colon contrast Xray and did not pay a cent.
   Everything including prescriptions, food, semi-private room, tests, and all medications is covered by the Government - not insurance.
  I am not sure how you all afford everything that these diseases entail!
 
Thanks for all the support!
 
October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/6/2008 4:14 PM (GMT -7)   
Isn't it wonderful to be home? I'm so happy for you! yeah And not to pay anything for all of that medical care and testing is amazing. Who knows, the US might be headed in that direction. rolleyes
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/6/2008 4:23 PM (GMT -7)   

Hi Angela!  Welcome Home!!  I am a fellow Canadian who greatly appreciates the free health care we have too!! smilewinkgrin I hope the next part of your journey is filled with good health!!  I live in Ontario..which province are you in??


Unplugged2
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/7/2008 12:20 AM (GMT -7)   
Hi Angela,

Thank God eveyrthings back to normal.

I've had these pains as well. I have an ileostomy for nearly 4 years now and had 5 years with a colostomy. I prefer the ileostomy better.

At first I didn't know why I got these pains. but I then realized it was what i had eaten earlier that day. once I ate too many peanuts. Have you ever tried that? Don't!! lol

It blocks you passage way and so does popcorn. And the PAIN! It feels like you need to EXPLODE! Like you're a walking gas bomb and it's backfiring in your own body.

Once while on the colostomy I've eaten mountains of strawberries and some seeds had punctured the inside walls of my colon. And the BLOOD - WOW! it was poring out of me.

But I went STUPID - I didn't know that the strawberries were the cause. I thought I was having a CANCER ATTACK and this was it. So if this was it? Silly me played my Softball game - Dump 2 pounches of blood behing a tree. Had a few drinks.

funny thing I had no pain and yet all this blood.

Anyway in the wee hours of the morning 4:00 Am I had to go to the washroom coz blood was leaking through my flange. My wife notice my staggering to the bedroom and thought it was coz I was still drunk from drinking.

As soon as i reach my private toilet the pouch was full - right to the top of all 10 inches. I passed out right there. fainted - fell to the floor - blood all over me - Next thing i noticed was waking up in the hospital with tubes of fliuds stuck to my arms. One of them was RED!

The strawberry seeds nearly killed me that night. And I thought it was the END! I lost nearly 5.5 pints of blood. Now i don't assume anymore. It can always mean something else is wrong with you.

Cheers!

Lonnie

PS: btw: I was up and running - playing ball the very next day. Sigh...

Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/7/2008 10:18 PM (GMT -7)   

Holy Crap Unplugged! Sounds like you have been through the ringer!  Good on you for keeping such a positive attitude!

Roddiesgirl, I live in Calgary, Alberta. How are the wait times at the Emergency rooms out east??  Its an average 6 -8 hours out here.


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/8/2008 5:55 PM (GMT -7)   

Hey Angela!...The wait in emerg here is about 3 to 4 hours, although it can be longer.  I had my surgery in Kingston.  I also had surgery there 2 years ago and the diffference in the two years is unbelievable!  The care I received this time was not half as good as in 2006.  I felt bad for the nursing staff as they are so rushed and stressed!  Some can handle it and some cant...it's the "cant" ones that are sometimes nasty and short with patients.  All in all though, we still have it pretty good here in Canada eh? tongue I wouldn't live anywhere else!!!  Hope you are feeling better!Cheryl


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/9/2008 11:47 AM (GMT -7)   
Hey Angela,

Glad things are doing better and sorry to hear about your obstruction and the pain you suffered, I hadn't had to go through that pain in a very long time 15years as I was in a bag for 11yrs but I can remember the pain well. Can you or anyone tell me if the Docs still use the prednisone shots to hit the system fast? I know they backed off Steroid use but is it still a tool used for obstructions like you had? Those type I always had to get the shot of prednisone to help relieve the pain and obstruction.

I had my take down 3 weeks ago and I was in John Hopkins in Baltiomre it's a teaching Hospital, I had the most wounderfull nurses around the clock and each morning I had a team of 7-8 Dr's in training that surround my bed a 6am to review my status my surgeon stopped in almost each day around 10am.
All the rooms are private and you have your own bathroom with shower you get three meals a day (not me I had 3 meals in 10 days) each room had a view of the city so you didn't feel closed in. After surgery I was on a time release Morphine button I could push every 15 min and I had that for 5 days then I went to shots every two hours untill I left the hospital.
I have health coverage with my work and my over all total cost for everything will be 10% of the cost...I don't have a final cost but if its 50 or 60,000 then I will pay 5 to 6,000.

Oh... I did have to pay 10$ a day for the phone and TV to be turned on but it was worth the $100 to have TV.
Our country just voted on nation health care so we will be doing somthing but were not sure what...our new President said it would be equil to the care that our US Senators
and Congressmen have....we can only hope that is half true.

Post Edited (MDdave) : 11/9/2008 11:59:06 AM (GMT-7)

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