(((((((((((((( Ostomy Friends ))))))))))))))) Oh . . . ok . . . now I really crying. You guys are SO sweet. I guess I just didn't expect so much support. We are a very close bunch at the Lupus forum, but I had just hoped for some suggestions here since no one knows me. You have absolutely made my day.
I'm actually not so involved with her care. I do visit but have only been with her briefly. I just was trying to think of ways to bless her. You guys are the best. Yes, even the simplest things can be comforting. I hadn't thought of the skin care yet . . . I was gently holding her hand and felt her feet to check for swelling and to get an idea if gentle squeezing of the feet and maybe a tiny bit of foot motion might help . . . but I was really afraid to hurt her. I just keep thinking about
blood clots and circulation . . . and you know the drill . . . all the things that go wrong when a person is bedridden.
So . . . We got a bad update last night. Swelling, heart flattened (doc said like standing on a tennis ball), and she spiked a fever. Today they said that there is leaking and the doc may have to do more surgery . . .but my source didn't know if it was leaking from the ostomy or the repair inside. Ugh. But . . . my sister was up to see her this evening and gave good news: She is able to write a tiny bit (hands still too swollen) and her fever is coming down . . . doc said her heart is strong and they have taken her off the blood pressure meds and her blood pressure is stabilized. She is alert
tonight . . .YEAH! Doc said we are still not out of the woods, by any means . . . but she has really surprised him . . . he can't believe her improvement!!!
Sorry this all got SO long . . . your kind suggestions of music, ice chips, popsicles, hand and body lotion are all great. She wasn't allowed the ice yesterday . . . but maybe now. They didn't want to cause any activity in the stomach. But hopefully tomorrow.
((((((( Amanda ))))))) I hope your surgery goes perfectly! Merry Christmas!! Imagine how most of us take for granted the bathroom 'duties'.
Thanks everyone for the encouragement and support. Healing Well and its members are such a blessing !!! I'm sure I'll be back with some questions.
Thanks again . . . and
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator