Help! What do you think??

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soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 11/17/2008 8:58 AM (GMT -7)   
So, I have been having a lot of trouble the past month or so.   I am having over 20 bms per day - just water..yuck.  I can't eat much, get nauseated easily and my abdomen is very sore. I have tried bentyl and flagyl but they have not helped.  Lomotil and Immodium never work for me.  I guess the one thing that bothers me the most is that I am having some pain (not all the time)  at the exact spot that hurt like HELL when I had my obstruction.  Does this sound like pouchitis?  I have read that pouchitis is supposed to make you feel like you have the flu - I don't feel THAT bad.  It couldn't possibly be another obstruction - partial maybe - with me going this many times a day.   My GI wants to do a scope Thursday.  Not looking forward to that.
 
Let me know what ya'll think.
 
Thanks!

Diagnosed Pancolitis 5/05.
 
9/8/08 - Complete Obstruction - resolved w/ 4 days of a NG tube
8/19/08 - Reversal
7/3/08 - Step 1 of 2 step J pouch
Hospitalized 5/08 Severe Flare
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/17/2008 10:10 AM (GMT -7)   
Sorry to hear you are having such pain! For me, nausea/vomiting were always signs of a blockage. I don't have a J-pouch, so I cannot answer your question. I think the scope is a good start to finding out what is going on. Let us know how things go on Thursday!

soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 11/17/2008 10:14 AM (GMT -7)   
Thanks Ohio,
 
I guess I just don't want to sound like a hypochondriac!  I mean I KNOW that I am supposed to have 8-10 bms a day - but I think this is a little excessive.  I just hate to have to have another tube put in my nether region....  I really thought I was done with that after the surgery.  Oh well.
Diagnosed Pancolitis 5/05.
 
9/8/08 - Complete Obstruction - resolved w/ 4 days of a NG tube
8/19/08 - Reversal
7/3/08 - Step 1 of 2 step J pouch
Hospitalized 5/08 Severe Flare
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/17/2008 10:30 AM (GMT -7)   
Some of your symptoms sound like a partial obstruction but what concerns me is the duration of over one month. Typical POs don't last more than a few hours. I think you should ask your doctor about possible strictures further up?

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 11/17/2008 10:34 AM (GMT -7)   

Sue,

Will a scope determine a partial obstruction?

 


Diagnosed Pancolitis 5/05.
 
9/8/08 - Complete Obstruction - resolved w/ 4 days of a NG tube
8/19/08 - Reversal
7/3/08 - Step 1 of 2 step J pouch
Hospitalized 5/08 Severe Flare
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/17/2008 12:50 PM (GMT -7)   
No but it identify a stricture. Try to identify as best as possible where the pain is coming from when you have these occurances.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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