PROBLEMS WITH DRAINAGE FROM MY RECTUM AND VAGINA

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San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 11/30/2008 4:04 PM (GMT -7)   
 
 If anyone out there can help me or has some answers I would like to hear from you.
    It will be three years this coming June that I had my permanent colostomy surgery done.I was told nothing as to what to expect in the coming days,months,or years,but now I have found myself having a lot of  problems.I have been in touch with my stoma nurse,and am getting no where.I have gone back to the surgeon  who did the surgery,and he says that he has no idea what is going on,and to move to a Rectal/Colon Specialist.Well I have done that,in fact I am now going to my fourth Rectal/Colon Specialist,and all I am hearing is I don't know what is going on or causing it so I am not going to touch you.All they do is stick their finger up my Rectum.I have another appointment for January 9th way up in Pittsburgh,with another Rectal/Colono doctor,and I live in West Virginia.My problem is that with out any warning at all,whether I am sitting,standing,or walking,all of a sudden I get this wet feeling either from my Rectum or from my Vagina.It has gone past the mucus stage.Now it is almost the end of having Diarrhea.I would say that even when I just sit on the toliet,I drop about a good table spoon full in,of what it is that I am passing,with out even feeling it come through Rectum.This is happening no matter where I am.It is really embarrassing when I am out in public.Even though I try to pad myself really good there are times when it comes right through to my pants that I am wearing.
   I have read up on how  my colostomy was done.The paper work said that I had a sigmoid colostomy done.Can I still have my colon remove and my rectum sewed shut,or has someone else had the same problem,and if so,what did the  doctor to do correct the problem,and did it work.I am at witts ends when it comes to this.My Rectum is so sore that it is beyond funny.I itches all of the time,and everything I have tried to stop the itch has not worked.
   I welcome anyone suggestions,as I am trying to get this surgery done.I am tired of it.It has been going on far to long now.
                                             Thank You
                                                  San's

Post Edited (San's) : 11/30/2008 4:09:04 PM (GMT-7)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 11/30/2008 9:06 PM (GMT -7)   
Have they ruled out the possibility of a fistula (which basically is a tunnel between two organs, in your case between your vagina and/or rectum)? This can cause leakage in both areas.
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/30/2008 9:09 PM (GMT -7)   
Sans,
It sounds like you have a rectovaginal fistula, which is a tunnel that has formed from the colon to the vagina. You can wear a maxi pad to keep it from draining onto your clothes. Yes, you can have your colon and rectum removed and have your rectum sewed shut. It's called a proctocolectomy. I had it done two years ago and have no regrets.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 12/1/2008 9:47 AM (GMT -7)   
I don't really understand how these things work but I had similar so I totally understand how you are feeling.  For me though it wasn't itching it was intense burning but the advice I got was to put loads of vaseline on and this surprisingly helped a lot and also to have a couple of salt baths a day.  My problem though was my bowel had perforated onto my vagina and bladder.  I had an operation 3 weeks ago to sew up these bits and a resection and I now have a temporary ileostomy awaiting a bit of healing.
 
They found out this is what I was suffering from by having a CT scan but it took an awful long time for them to take it seriously as they presumed it was just bladder infections requiring tablets.
 
I really hope they find out what it is with you and have it sorted soon as it's awful isn't it.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/2/2008 5:23 PM (GMT -7)   

Sans and Miss UK, do you ladies have Crohn's? The reason I ask is because fistulas can occur with Crohn's, but not Ulcerative Colitis, at least that's what my gastroenterologist told me. I had fistulas and abscesses when I had active Crohn's, and they were terrible. I haven't had any active disease, fistulas or abscesses since my proctocolectomy two years ago, so there is hope.


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


draegs
Regular Member


Date Joined Jun 2008
Total Posts : 31
   Posted 12/2/2008 7:44 PM (GMT -7)   
If you live in WV and your appointment in Pittsburgh yields the same answer, it may be worth a trip to visit the Cleveland Clinic. They are ranked #2 in the country for digestive diseases and have some of the best colorectal surgeons in the country. Before having my surgery I talked with a bunch of people who had gone there as well and they all were able to resolve any complications that came up after their own surgeries.

If I were you, I'd call and make an appointment there now. If things (hopefully) work out in Pittsburgh you can always call back and cancel. If they don't, at least you don't have to wait another month to see someone. I know this doesn't answer your question, but also I know I appreciate all of the information I can get when asking about medical issues.
James
26-year-old diagnosed with UC in 2004
Underwent stage one of J-Pouch surgery on September 16, 2008
Now living symptom-free thanks to the Cleveland Clinic


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 12/3/2008 5:57 AM (GMT -7)   
Hi, yes flchurchlady I do have Crohns.

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 12/4/2008 6:50 PM (GMT -7)   
Hi Sans!

I have a rectovaginal fistula which some of the other members believe you may have. I noticed it 22 years ago after I gave birth to my son. I had stool coming through my vagina just a few days after I delivered. It eventually healed on its own, but I definitely tried to see other doctors about it. It all started from a 4th degree laceration, which turned into an infection. Then I got the fistula. Now in my forties, I gone through several operations to fix muscle and nerve damage in my rectal area. I developed a horrible abscess, which then became the rectovaginal fistula. After several surgeries in Columbus, I decided to go to the Cleveland Clinic. I've had two operations so far. I'm going back in March for more surgery. My fistula will not heal because I have too much scar tissue. I'm going to have my surgeon use good tissue from my thigh to fix it. Two other surgeons will then perform reconstructive plastic surgery to make the area look and work better for me. In the meantime, I was given a temporary loop ileostomy so the area can heal properly. If my first surgeon back in June 2007 had given me the ileostomy first, I probably would not have developed the abscess. It was huge he said, the size of a softball. I will tell you, since my last operation last February, I now have blood from my periods coming through my rectum. However, it is better than having stool come through my vagina. If you still ovulate, it may be fluids from that. Women do become wetter in those areas during that time. Don't you think? By the way, if you don't already, see if you can load up on zinc and panthenonic acid. Both are supposed to aid in healing wounds/tissue.
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