Nighttime blow-out

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 12/6/2008 10:49 AM (GMT -7)   
I have had a temp ileostomy since October. Not sure if my output is high, but I end up changing my pouch approx 10x/day. I get uncomfortable if it gets more than a quarter full.

At night, I have been trying to keep myself awake until midnight so I don't have my sleep interrupted by needing to empty. Despite not eating after 6 pm, I usually awaken at 5 am with a rigid pouch nearly full of waste and gas. It is often messy to empty when it is that full. This morning I awoke with my first leak due to overfilling, I guess I should be thankful it happened in the privacy of home.

Does anyone have any suggestions for me? Is this normal? Do they make bigger pouches for nighttime use?

Thanks for your help!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 12/6/2008 10:49 AM (GMT -7)   
Oops, I meant to say emptying my pouch 10x/day, not changing, LOL.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 12/6/2008 12:19 PM (GMT -7)   
It took my body forever to slow down output--and at first I didn't like how it felt if just a tiny bit was in there. It will slow down and you will get used to it; it just takes time. I know some folks do things to slow down output at night like eating marshmallows--not sure if it works but it can't hurt trying. Have you tried using Imodium? I still have to wake up early (regardless of what/when I eat) to empty, but I think the Imodium slows it down a wee bit. If I only get one more hour of sleep before emptying I'm all for it. I'm sure others will ring in with some suggestions. Good luck.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/6/2008 10:41 PM (GMT -7)   
Watching sugar, caffeine and fat intake in the evenings may also help to slow things down. They tend to speed things up for me.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 12/7/2008 3:58 AM (GMT -7)   
How about setting your alarm for 3am so you can get up and empty then you can go back to bed and enjoy the rest of your sleep?
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/7/2008 12:02 PM (GMT -7)   
i still have to empty mine at night, and it doesnt' seem to matter how much i eat or when. IF i try not to eat though, i get more gas and that makes it worse. You might try eating a banana or something that will thicken it up and slow it down, or take some immodium (which someone already said) and two gas-x shortly before bed.
Also, this is sort of like a security blanket thing to me, i sleep with a waterproof pad under me at night. It helps me sleep better cause i know if i do leak i will just have to get up clean me up and throw that stuff in teh washer, instead of the whole bed!
If i don't have that i dont' sleep as well and wake up more to empty. Last night i spent the night at a friends house and i was tossign and turning for a while, until i got up and got my t-shirt and folded it up under me then i went right to sleep, lol.
good luck!

hendersonjames
Regular Member


Date Joined Sep 2005
Total Posts : 89
   Posted 12/7/2008 7:38 PM (GMT -7)   

When I had my ileo I ususally emptied twice in the night. 

 


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 12/7/2008 8:22 PM (GMT -7)   
Thanks for the all the info and suggestions, everyone! It helps to not feel alone.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 1:49 PM (GMT -7)
There are a total of 2,904,965 posts in 318,813 threads.
View Active Threads


Who's Online
This forum has 158187 registered members. Please welcome our newest member, Zenfinity.
358 Guest(s), 17 Registered Member(s) are currently online.  Details
djc5000, LymeSick 🌟, netsavy006, Spring, CopperGuy, Purrrsiankitty, Aset28, ArtAngel, Starlight*, Maverick6981, Saipan Paradise, gabybee, Anjne, AZ Guy, Laubeb, Tall Allen, Bugleboy