I have had a temp ileostomy since October. Not sure if my output is high, but I end up changing my pouch approx 10x/day. I get uncomfortable if it gets more than a quarter full.
At night, I have been trying to keep myself awake until midnight so I don't have my sleep interrupted by needing to empty. Despite not eating after 6 pm, I usually awaken at 5 am with a rigid pouch nearly full of waste and gas. It is often messy to empty when it is that full. This morning I awoke with my first leak due to overfilling, I guess I should be thankful it happened in the privacy of home.
Does anyone have any suggestions for me? Is this normal? Do they make bigger pouches for nighttime use?
Thanks for your help!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch