i have recently undergone the j-pouch step one surgery 7 weeks ago with the takedown surgery planned somewhere in march-april of next year.
the surgery went very well although i still have a little bit of pain, but i control this by using mild painkillers as necessary. i have also started working this past week and started driving a month after surgery, although i still take it easy, i plan my trips carefully and dont drive very far and very often yet.
i just have one concern....at times i experience a burning sensation while waste or gas passes through my stoma and this has never been the case with my first stoma i had. the surgeon changed the stoma a little bit this time around. it doesn't look like a rosebud anymore, but is more flat against my skin.
it's almost like stings through my body as the waste passes through...it's sometimes so bad that i have to either sit or lie down. i sometimes massage the area with vaseline as you can feel the burning sensation on my skin as well.....on friday at work i had it real bad, i felt like fainting at times, because it was so unbearable.
i phoned my ET nurse and she said that some patients do experience this and that i should maybe have a look at my diet, like not eating spicy foods etc. i don't eat spicy foods and i do drink lots of water, but on occassion i do eat junkfood, but only on occassion.
My ET nurse also said that if the discomfort and pain doesnt subside, i should rather contact my surgeon so that he may prescribe something as she doesn't want to prescribe just anything.
has anybody ever had this experience of a burning, painful sensation when waste or gas passes through the stoma? i would really need some advice on this please as i am at wits end. i so much want to have a normal life with this bag....i was fine with it for 2 years, but now this stoma is making me not wanting to go anywhere or wishing the day at work could just end.
bIaNcAcHaRlEnE aGe 29
DiAgNoSeD sEpTeMbEr 2006
AsAcOl TaBlEts 2x DaIlY
aSaCoL sUpPoSiToRiEs 2x dAiLy