Burning sensation whilst passing waste through my stoma

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Bionic B
Regular Member


Date Joined Apr 2008
Total Posts : 42
   Posted 12/7/2008 7:01 AM (GMT -7)   
Good day
 
i have recently undergone the j-pouch step one surgery 7 weeks ago with the takedown surgery planned somewhere in march-april of next year.
 
the surgery went very well although i still have a little bit of pain, but i control this by using mild painkillers as necessary. i have also started working this past week and started driving a month after surgery, although i still take it easy, i plan my trips carefully and dont drive very far and very often yet.
 
i just have one concern....at times i experience a burning sensation while waste or gas passes through my stoma and this has never been the case with my first stoma i had. the surgeon changed the stoma a little bit this time around.  it doesn't look like a rosebud anymore, but is more flat against my skin.
 
it's almost like stings through my body as the waste passes through...it's sometimes so bad that i have to either sit or lie down.  i sometimes massage the area with vaseline as you can feel the burning sensation on my skin as well.....on friday at work i had it real bad, i felt like fainting at times, because it was so unbearable. 
 
i phoned my ET nurse and she said that some patients do experience this and that i should maybe have a look at my diet, like not eating spicy foods etc.  i don't eat spicy foods and i do drink lots of water, but on occassion i do eat junkfood, but only on occassion.
 
My ET nurse also said that if the discomfort and pain doesnt subside, i should rather contact my surgeon so that he may prescribe something as she doesn't want to prescribe just anything.
 
has anybody ever had this experience of a burning, painful sensation when waste or gas passes through the stoma?  i would really need some advice on this please as i am at wits end.  i so much want to have a normal life with this bag....i was fine with it for 2 years, but now this stoma is making me not wanting to go anywhere or wishing the day at work could just end.
 
Please help!
bIaNcAcHaRlEnE aGe 29
DiAgNoSeD sEpTeMbEr 2006
AsAcOl TaBlEts 2x DaIlY
aSaCoL sUpPoSiToRiEs 2x dAiLy
 
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/7/2008 11:57 AM (GMT -7)   
i have but only when i eat certain things. Like hot things or things that are very acidic. that day i ate the whole fresh pineapple it burned like crazy! lol.
i would call the dr cause it shouldn't be so bad that you have to lie down
Hope you feel better

Bionic B
Regular Member


Date Joined Apr 2008
Total Posts : 42
   Posted 12/9/2008 9:42 AM (GMT -7)   
hi there

thank you summerstorm. i phoned my surgeon this morning and he told me that by the way in which i explain it, it seems like the stoma needs widening and that i should let my ET nurse have a look at it and show me how to take a glove and some ky jelly and then maybe widen it with my finger if that is the case....something that i am so not looking forward to :-/ anyways i am seeing my ET nurse on Friday

in the interim i am watching what i eat and i have picked up that it isn't as frequent if i eat like poridge or fish or chicken and stuff like butternut and potatoe and gemsquash and banana. i drink lots of water and orange juice as well.

today, however we had a work function and who could resist, but ey it's just one day and the things on the plate weren't spicy...

i know this will soon pass, nothing lasts forever so i try my best to remain positive....

i will feedback on what happened at the ET nurse....

Take care
Biancacharlene age 30
Diagnosed with Ulcerative Colitis in August 2006
Underwent emergency surgery to remove 90% of colon in September 2006
On medication:  Asacol tablets and surpositories 2006 - October 2008
Underwent JPouch stage one surgery in October 2008
Currently uses no medication
Awaiting Takedown surgery in March 2009
 
"I am the exception to the rule :-) "
 


Bionic B
Regular Member


Date Joined Apr 2008
Total Posts : 42
   Posted 8/13/2009 10:25 AM (GMT -7)   
LOl...i cant believe i never gave feedback on my situation...anyway I don't even have a stoma anymore. I went for takedown surgery in May of this year and everything went very well. Now 3 months down the line I am doing exceptionally well and I can eat basically what i wanted.

the reason for above situation with the burning sensation was an irritation around the skin of the stoma...why i never thought it could be that i never know, but my ET nurse gave me gingin violet to put on very cheap and worked like a charm everytime i had to change the stoma. so there was nothing wrong with the size of the stoma as she examined it quite well.

im just glad that's over and that after 2 years and 8 months i could say good bye to my "boyfriend"

:-)
Biancacharlene age 30
Diagnosed with Ulcerative Colitis in August 2006
Underwent emergency surgery to remove 90% of colon in September 2006
On medication:  Asacol tablets and surpositories 2006 - October 2008
Underwent JPouch stage one surgery in October 2008
Currently uses no medication
Awaiting Takedown surgery in March 2009
* - Underwent Takedown surgery in May 2009 successfully and still going strong!!! :-)
 
"I am the exception to the rule :-) "
 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 8/14/2009 1:54 AM (GMT -7)   
Wow Congratulations
What a pleasant piece of information you have given. I am glad that finally you are out of the mess. Infact, I did not realise that your initial post was of 2007, and I was about to reply to the same. I too used to have that irritation. It used to be because of skin infection caused by wrong cutting on the appliance, resulting in leakage of waste below the pouch. Anyway, gones are bygones. Happy days are here again. Cheer Up.

I am glad you updated all of us.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 

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